Holding Down Job

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Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted 8/23/2010 12:23 PM (GMT -6)   
Are most people with Lupus able to hold down a job too?  I feel like my full time job is take out any energy I have.  It's a battle to get meals cooked & laundry washed at home - everything else has to be overlooked.  I just wonder if this stress is causing my BP to be high.  Also wondering if I'd have less flares having less stress.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/23/2010 12:41 PM (GMT -6)   
I can't answer your question I'm sorry. truth is I'm in aw of people who do what you do. I have to set on a shower chair and a hand held show hose to wash my body. it litterally takes me two days to plan to go to church on sunday. I have to show er the night before and find my clothes. Than if they need ironed I have to set my alarm for 7 so I can be ready to get out the door by 10:30. I do think stress can bring on flares but there are a lot of things that can cause the stress. If it's getting to be to much ask your doctor to put you on part time and since it's for medical purposes you are probably entitled to some type of assistance. I know it's not easy but if you plan on sticking around you need to do what's best for you.
citracal,pottasium,vitB12 ,iron,xopenex,advair,spirivia,soma,b12 shots,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high bp COPD, need left lung transplant. cervical cancer survivor, osteoporsis, Jesus is a friend of mine.
"We come into this world crying while all around us are smiling. May we so live that we go out of this world smiling while everybody around us is weeping."

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 8/23/2010 6:02 PM (GMT -6)   
Hi Jenny,

Like Carol, I can only answer for myself....I had a full-time job plus a part-time job, then I let go of the part-time job, now my full-time job has been scaled down to part-time (from 40 hours to 24 hours). Next step is to stop working altogether, I guess. sad

I just can't keep going....it's all too much for me. Carol, I totally relate to what you go through. Just taking a shower EXHAUSTS me; I want to lie down and take a nap afterwards.

Stress of any kind can cause my lupus to flare.

You do need to take care of you....
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


challenged nurse
Regular Member

Date Joined May 2010
Total Posts : 69
   Posted 8/23/2010 6:29 PM (GMT -6)   
I tried to hold down a full time job working 40 +hrs. Then I slowly so that I changed to part-time working 20hrs or less. But now I am not working any. I takes everything I have to get out of the bed to brush my teeth in the morning. I've only been dx for a year. It has taken a toll on me since then. You just have to know when to say when.
DX: Lupus(UCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Prednisone 10mg, vit d3 50,000 weekly, b12 injection, Prevacid, Tramadol, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ, Aspirin.

I can do all things through Christ that strengthens me.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 8/23/2010 7:29 PM (GMT -6)   
I have never been able to work long before I got bad sick. So I envy people who can work. I know some lupus patients are able to work but I haven't been able to.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 8/24/2010 6:09 AM (GMT -6)   
Yes, still working 40 hr weeks. I think it honeslty depends on what and how your body is feeling. There was a time a few months ago I had to take a break and landed on Short Term disability but that rest seemed to be what I needed and now I work 40 hrs. Yes, it is extremly difficult but somehow i make it through friday each week. Now my weekends and evenings generally consist of sleeping and not doing anything at all.
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Regular Member

Date Joined Mar 2010
Total Posts : 90
   Posted 8/24/2010 4:28 PM (GMT -6)   
This is exactly what I've been thinking about the past few weeks. It's really sad I feel that I have to choose between work - then coming home and sleeping or laying down in pain....or not working/working less from home, and being able to do other things - never both and if I attempt both I can count on a virus, or some sort of flare that will have me down for weeks.

I'm only 26 and even this weekend when I was really excited for a weekend away with my boyfriend I worked while I was sick last week and had to cancel the weekend. I had to miss my grandma's 80th birthday because I was working too hard and got sick. I feel like I can't plan anything anymore and its not fair that the folks at work expect me to be there and on top of things - albeit with sympathy - however, if I do that, I'm forfeiting the rest of my life...the rest of it is spent in bed...no questions asked. I can't afford to give up my job, but its just sad...I want to be living the life of a 26 years old and haven't gotten to for the last 2 years. Now I think about my dreams of finishing my house and making dinner everynight or going out or running around after kids and even the thoughts of it make me tired. Guess I'm more of Debbie Downer than offering help, but all of my friends and even coworkers told me I need to take care of myself and have a life too...so now I'm just trying to find the balance. It's just a lot more difficult to balance when we are dealing with this. Goodluck trying to figure out your balance and I truly wish you the best :)

Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted 8/25/2010 6:31 AM (GMT -6)   

Thanks for your help. It is difficult being a young person with Lupus. I'm 32, but I went thru the same battles you are facing during my 20's. I 100% relate to your frustration & challenges.


New Member

Date Joined Apr 2009
Total Posts : 14
   Posted 8/29/2010 3:49 AM (GMT -6)   
Hi Jenny
When I first was diagnosed with Lupus I had to leave my job and find a job which paid as much but was not as stressful. Currently I hold a full-time job and take full advantage of my sick leave (7 days a year). Once in a while when i can't handle it I take a sick leave day attached to the weekend. Esp if that month does not have a long weekend in it. This is my management stategy. Without my dollar my family would suffer so I have no choice but to work. Weekend routine involves shoppping, fun activities and housework (alternate weeks) shared by 2 kids and Hubby on saturday - and sleep in day on sunday ( the teens love this). I even say no to visitors on sunday. I guess the same pattern may not work for every one but finding solutions when you have no option but to work is the next best thing. about 2 weeks ago I had to ask for extra medical leave as I was so exhausted and afraid of driving - all be it unpaid leave - I still have a job to go back to.
There is hope and thats what we can hold onto.

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 8/29/2010 4:01 PM (GMT -6)   
Hi! Jenny,
I just had to make the decision to retire and apply for disability. I had to cut my hrs. and change jobs starting 5 yrs. ago when I was first diagnosed. I had a job I loved, and it took me two years to accept I could no longer work effectively, accurately, or safely, and that I owed it to myself and my family to stop working before I lost every chance for some level of wellness down the road. I am only 55, and realized the decisions I make today about what I do will have a direct cause and effect on how sick, and how limited my ability to care for myself, will be 10 and 20 yrs. down my road. Lupus affects each of us differently, and I can only encourage you to rest, and listen  to your own instincts.
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