I can't breathe properly!

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Regular Member

Date Joined Jan 2010
Total Posts : 25
   Posted 8/26/2010 9:08 AM (GMT -6)   
Hello everyone. I haven't posted on here in quite awhile, but I have been reading a lot of things that are posted and I also chat in the Chronic Pain chatroom frequently. I hope you're all doing well!

A bit of background: I'm a 23 year old female and was diagnosed with Lupus a year ago and have been on Plaquenil, Prednisone, and Voltaren daily. My current issue is I'm having a lot of trouble breathing/shortness of breath. I can only seem to get a full deep breath after I try 6 or 7 times. I just have shallow breathing otherwise. When I get close to having a good breath in, or manage to get one I often have a weird stabbing pain in my back or chest or it sometimes feels like someone is sticking a finger in between my ribs. It also seems like sometimes I have to yawn my way through a deep breath. This has happened in the past and my doctor checked me for a clot and there wasn't one. It just seemed to get worse last night, and I was getting uncomfortable from not getting enough good breaths in. I read up on Pleurisy and it doesn't sound quite as severe as that. There usually isn't a burning sensation and I don't really cough a lot. It just feels like my lungs can't expand all the way for some reason. It's getting pretty worrisome; I went to a walk-in-clinic last night and they told me to go to the ER but that would cost me a bajillion dollars because I don't currently have insurance. Does anyone else have this problem? confused


Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 8/26/2010 10:14 AM (GMT -6)   
Most hospitals have a program where all or part of the hospital bill will be forgiven based on your income level. You just have to ask about financial assistance. I would seriously consider the ER because breathing problems can signal serious problems.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 8/26/2010 11:43 AM (GMT -6)   
Hey Misty! Are you by chance still seeing the rhuemy that prescribed your meds? If you are, I would deffinatly call that doctor. If this is lupus that is causing this, it should be looked at asap.

If not, I would ask your local hospital about financial assistance! Sorry couldnt be of more help but know I will be thinking about you.
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Regular Member

Date Joined Jun 2008
Total Posts : 90
   Posted 9/10/2010 5:40 PM (GMT -6)   
Hi Misty! You should DEFINITELY see ur rheumy or go to the ER! I don't want to scare you, but a few years ago I had the same symptoms u r describing & it ended up being congestive heart failure. Even if that's not what it is, the sooner u can catch something, the better. I hope u luck out & that's not even close to what it is, but I just wanted u to be aware of how serious it can be & that u shouldn't let it go. Good luck & I will keep u in my thoughts & prayers. Keep us updates & get better soon!!!!
Lots of Love!
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure

Regular Member

Date Joined Jan 2010
Total Posts : 42
   Posted 9/10/2010 10:56 PM (GMT -6)   
I had the exact same thing happen to me last year. I was 23, in a lot of pain, and had absolutely no money or health insurance. I ended up going to the ER and I've actually been back several times since. Yes, it's expensive, but doable. I've been to 3 separate ER's and my bill was never more than $800, and I have been able to pay it off monthly, usually around $50 a month. If you get admitted to the hospital, they have financial assistance programs that are usually amazing. 2 of the 3 times I've been admitted my hospital bill was completely dismissed (still have to pay the ER bill though). The one that wasn't dismissed was reduced by 80%. Sorry if this is too long winded! I guess I just wanted you to know you're not alone and they have payments plans so just go! Especially if the walk-in clinic told you to go.
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