we are glad you are here. Regardless of what it's called, sick is sick, and Boy! do we know sick. We'll help you take a deep breath..... ok, you aren't losing your mind, and guilt? I feel that way because other than being puffed up from prednisone, I don't look sick! So how can I be as sick as I say I am??? I actually said that to my dr. And he said that's what many of his lupus pts. say. Autoimmune illnesses are tough on a good day, and notoriously hard to diagnose. One day the antibodies are there in our blood, the next month they aren't. You'll note from many of our posts, that sun, the wonderful, glorious, life giving, beautiful, warm, (did I mention wonderfully warm??) sun is our enemy. I lived to be in the sun, and it makes me my sickest. And, one reassurance, many of our symptoms come and go, as we flare and remit. That's why drug therapy is so important. And seeing your drs. as often as you need to! So you are on the right track. Keep us posted and know, at least, that We know . And you can cry loud if you want to. I am a sobber, a loud sobber. And a difficult IV start. My central line was alittle scary, but a blessing, because my veins are lousy, too and the meds felt like acid being dripped in them. I'd tuck my microwave heating pad around your neck for you if you were closer, and hope you will feel less rotten, soonest.
ps. thinking "crooked" is perfectly ok here, too. Hope you feel better, Red, too.