hi. they are now saying MCTD. (polymyositis, sjogrens, lupus)
such a hard week. went to appointments everyday bymyslef. getting homeaid soon. infusion nurse did best everyday to push 100mg of solumedrol in with butterfly. m-f. getting IV port in wed. did pre-op for IV port sugery today. (on own.....limping through hospital.....i think people think bc you look half decent and....hip (hate that word) you must be ok) i had a nurse that walked me through to lsat 5 apts.
then went back to rhem. apt. which push IV solu medrol 100 mg through butterfly, after veins blew again 5 times.
also got prescribed colchicine for labored breathing/apin in chest. (doc said hopefully should work tonigh)
i hope the IVIG works. i got approved. they ran into parking lot to tell me as i was getting in car. i will be able to start the following monday after IV port on wed.
this is all so sad. i always was able to rely on my brain. now i can't even rely on that. (they said the IVIG should help)
i hope this IV port surgery does not even make my flare up worse. i listen to music a lot. and close my eyes. smile. a lot. and cry. at times..................with YODA !!!!!!!!!!!!!!!! :)
i miss my body. i miss my mind. (i alsways figured the 2nd half of my life would be easier. i am 38)
Post Edited (Ms. Wonder) : 9/3/2010 7:38:52 PM (GMT-6)