So I had a gynecologist appt today and she was way more helpful than my rheumy! First of all, she referred me to a different rheumy, saying that she knows a lot of patients who have gone to the one I'm currently going to and have been unhappy with him, plus she didn't like how he shrugged off my frequent urination. She is going to research links between lupus and plaquenil and frequent urination, and she said even if she doesn't find anything, that doesn't mean that that still isn't the reason behind my bladder problems. She gave me a list of common foods and drinks that irritate the bladder, and wants me to keep a pee diary (lol) over the next few weeks to see if there are any triggers I notice.
Also, she told me the worst thing I can do is go to the bathroom just because I see one nearby. It's really tempting for me to use any bathroom I see, even if I don't have to go that bad yet, just because I know I will have to use it in a few minutes anyway. She said that is the worst thing I can be doing, and instead I should be trying to hold off going to the bathroom, even if it's just for 10 or 15 minutes. She said that helps build up the bladder muscles and will keep me from having to go to the bathroom so frequently.
She also said it may be tempting to cut back liquids, but that's also a bad idea. Lots of fluids are good for the kidneys, especially with lupus. Cutting back liquids can even make the frequent urination worse. I'm going back to see her in a month, and if none of these things work we will start looking into overactive bladder meds. Hope this was helpful to some of you!!!
Post Edited (ebet24) : 10/15/2010 11:12:25 AM (GMT-6)