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Regular Member

Date Joined Jun 2008
Total Posts : 90
   Posted 9/10/2010 5:16 PM (GMT -6)   
Hi everyone! I haven't posted on here for awhile, but considering it seems like I only post when something goes wrong, I guess I should be thankful for that! Well here is my situation: The past week I have been experiencing what I can only describe as anxiety attacks. I all of a sudden get really bad chills & feel very anxious/panicky. My blood pressure spikes and my heart feels like its going to beat right out of my chest. Been losing lots of sleep & shedding lots of tears. cry Has anyone else experienced anything like this?
I am getting married in May & my mom & sis are wondering if the planning and anticipation are stressing me out more than I think and causing these episodes. I cannot pinpoint what is causing it, which is what worries me the most I guess. I have always wanted a big wedding, but if that really is what is causing it, I don't want it to cause a flare and jeopardize my health over it.  I'm beginning to wonder if we should just elope & be done with it? Or maybe there is another underlying problem?
Any suggestions, advice or experience are welcome!!
P.S. I went to primary doc yesterday & she gave me a sample of Lexapro. Only on my second dose, so not really sure how its gonna work. Slept better last nite, but woke up feeling really shakey inside, if that makes any sense.
Lots of Love!
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 9/12/2010 8:22 AM (GMT -6)   
Hi! DQ,
I think I know just about what you mean. Your symptoms sound very much like mine, and I think you are already flaring. My nerves scream/my b/p spikes, my legs swell, I feel so anxious with my thoughts so chaotic I can't even cry cause I don't have any tears cause my eyes are dry/ misery it's hard to describe. My neuro said my symptoms are characteristic of pts. with cns lupus. So far I haven't had any seizure activity but that thought makes me panic too. I am glad you went to your primary, treating me for depression and anxiety was the first thing my gyn and pcp did for me, and thyroid. Remember, many antianxiety/antidepressive meds take awhile to kick in, so you may have to take them for abit. Its good to hear from you whenever  you post. Any stress in our life is a risk factor, too, I think. How about a wedding compromise..... balance between eloping/big wedding. Get your immediate family together at a restaurant for a team meeting, confess you are getting a tad stressed. See if you can simplify or muster the troops with assigned tasks. You don't need a fancy reception, go to Joanne's and have a bridesmaid get longstemmed somethings and a spool of beautiful ribbon and tie bows, check off flowers. Have another make a sheet cake or two and dump 20 pounds of conf. sugar icing on it.  Check off cakes. Ask Aunt Tilly to string bows on pews. Check off decorations.  Have an invite writing party and have fiance take charge of it while you take a nap. Check off paperwork! tongue and don't hesitate to say if I do this/I can't do that, and remember it is the joy of the occasion with family that is important. Don't forget to ask for help as you near the day. Be specific and know that people who care about you understand some of what it means to live with lupus. If they don't, tell 'em. Looking back, (i have had the same husband for 37 years), I didn't need two albums of pictures. and family only wanted one group picture at their house. I didn't keep my bouquet 3 years before the dust and mites took it over and I threw it out. I kept one pressed dried flower with a favorite 3x5. My dress went to the voa. both dear daughters laughed at the idea of even trying it on and both regretted spending what they did on theirs. What we remembered was the food, buffet of beans/mac salad/roast beef/ huge rolls/ olive tray/cake, coffee and tea. And a local band at the grange hall. and the STRESS! yeah And the fun. Try not to let yourself get depleted and exhausted. You need energy to have fun. Take care and I am truly happy for you,

New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 9/12/2010 8:59 AM (GMT -6)   
it is panic attack...
i have been taking medication....but now no more because i heard it is realllly bad...u get addicted with it.....

Ms. Wonder
Regular Member

Date Joined Aug 2010
Total Posts : 27
   Posted 9/13/2010 2:17 AM (GMT -6)   
yes, i have those exact symptoms. only when i am about to go into a flare up or in the midst of one. (me and my doctors have just recently recognized this) i heard him say CNS a while ago to the NP...........i am hoping i won't hear it again.

IV solu medrol always calmed it. and now i think being on the constant oral for about a month may have helped too. alot.

Congratulation on your wedding to come!! Super happy for you.

(sorry you are going through this though)

Regular Member

Date Joined Nov 2008
Total Posts : 106
   Posted 9/15/2010 5:00 AM (GMT -6)   
Yup I've had those symptoms the first time I thought I was having a heart attack and added stress doesn't help. I've been on anti-depressants for several years now. Mentally I feel much better, because of the meds.
DX:> NO Sjogren's 09, Fibro, NO Fibro, all over've got something we just don't no what?????
Life is what you make of it. Just something I try to remind myself every day.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 9/16/2010 6:32 PM (GMT -6)   
Sounds like you're really having a tough time Sweetie. Lots of events will trigger my anxiety flares so I've taken anti-depressants and anti-anxiety meds for years. If this helps, I would be honored to make your bridal bouquet with silk flowers. I've made 2 bridal bouquets, each in the color scheme requested, and the brides were thrilled. Making silk flower arrangements helps to relax me so I'm always looking for a reason. I've made lots of floral arrangements for people at no charge. Just find my email address by clicking Butterflake. As always, Love Butterflake. 

Regular Member

Date Joined Jun 2008
Total Posts : 90
   Posted 9/20/2010 4:55 PM (GMT -6)   
First of all, I would just like to thank Butterflake for your very generous offer to make my bouquet. That is so sweet of you!!!! I'd also like to thank everyone else for your posts & advice. I appreciate the support. I actually had to go off of the Lexapro after just 2 days because I ended up in the ER. The doctor was actually stumped as to what was causing my symptoms that led to the ER visit, so he just told me to stop taking the Lexapro and go home & rest. :( Its very frustrating when you feel bad enough to have to go to the ER in the first place, then you get a Dr. that knows nothing about Lupus, so instead of trying to figure things out they just send you home to "rest." If I thought that I could just get some rest & the problems would go away, I would not have gone to the ER in the first place! (Sorry, just had to vent a bit.) Anyway, my nephrologist has increased my bp meds because my bp has been pretty high. Since he changed it, bp has been very up & down. I'm hoping it will stablize here soon. I have also still been having anxiety issues, especially the more I try to relax. It seems worse at night when I am trying to wind down or trying to go to sleep, so I have still been losing a lot of sleep. I have an appt with my rheumy, but its not til Oct 15, so please keep your fingers crossed that my body & mind cooperate until then. I have faith that he will get to the bottom of this! Again, thank you all so much for your advice & support! Hope everyone is well!
Lots of Love!
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure
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