New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Sep 2010
Total Posts : 1
   Posted 9/12/2010 1:19 PM (GMT -6)   
I know this topic has probably been covered, but after searching for a while I'm reading conflicting information and thought I would just ask. I'm new to Lupus, my wife has not yet been diagnosed, but it seems very likely as she has shown many of the symptoms over the past few years, and after a recent weird rash and eye inflammation, her doctor has finally brought it up and sent her for more tests. She's very strong and this hasn't seemed to phase her in the least, at least outwardly, but it has for me because I love her very much.

So my question, does anyone have current information on Benlysta, is it still on track to be approved by the end of this year?

I've read great things about it, and bad things, the bad thing being that it has shown that it seems to loose it's effectiveness after about 18 months of use. Is this true? Does anyone have more information about it's effectiveness in clinical trials?

Thank you

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 9/13/2010 7:29 AM (GMT -6)   
 That is the best I could find as far as info on the drug goes that is current or looks to be current anyway.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 9/14/2010 5:47 AM (GMT -6)   
I attended a lupus conference this past weekend and Benlysta Briefly came up! It was brougth up by a DR at Duke University's Lupus clinic and she said the studies she has saw "has been great around the board for treating lupus"! That is about all that was mentioned about it but I do know she is looking forward to the FDA approval of it :)!
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Veteran Member

Date Joined Apr 2006
Total Posts : 1342
   Posted 9/14/2010 10:15 PM (GMT -6)   
A friend of mine was in the study and felt it was very effective.  Hopefully FDA will approve it soon...Europe already has. 
Why are we always last and most expensive?

Regular Member

Date Joined Aug 2009
Total Posts : 43
   Posted 9/15/2010 11:01 PM (GMT -6)   
I saw my rheumy last week and asked about Benalysta specifically... he said it was not going to be a viable option in the foreseeable future and we shouldn't hold out hope for it. If it comes through anytime soon, it will be a miracle. Keep your fingers crossed that Big Pharma delivers more than just a paycheck for itself...

Veteran Member

Date Joined Apr 2006
Total Posts : 1342
   Posted 9/16/2010 8:14 AM (GMT -6)   
Not sure it is so bad since it did well in trials and Europe has already approved it.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 15, 2018 8:19 PM (GMT -6)
There are a total of 2,981,850 posts in 326,944 threads.
View Active Threads

Who's Online
This forum has 161781 registered members. Please welcome our newest member, ngfnngngnn1q.
409 Guest(s), 8 Registered Member(s) are currently online.  Details
PeterDisAbelard., Dahlias, 3timechamp, Thishealingjourney, Redwing57, bmldance, LLLLX, Charlie1950