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Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted Today 7:43 AM (GMT -6)   
Anyone have trouble with swelling feet/ankles.  Mine are getting terrible anytime I'm out of bed.  Cannot even fit my shoes on ... becomes difficult to walk.  When to my Rhumy who referred me to a kidney specialist.  That appointment is a month away & the pain is terrible.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted Today 12:50 PM (GMT -6)   
Hi Jenny. Ask your rheumy to prescribe a diuretic and ask if decreasing your salt intake will help. Also, of course, keep your feet elevated as much as possible.
I get this sometimes and I know how painful it can be. You may want to get on the cancelation list with your kidney doc so you can get in earlier. Love, Butterflake

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted Today 4:49 PM (GMT -6)   
Lots of us with lupus have kidney problems.  I gained 20lbs of water weight a couple times until meds got things under control.  A diuretic reduces the swelling but may not treat the underlying condition or cause.  Of course, treating lupus is first and foremost as that is the most likely cause.  A common condition is proteinuria where the kidneys filter protein out of the blood which causes fluids to pass to soft tissue (edema).  The primary type of med to treat this is an ace inhibitor like lisinopril often in conjuction with a diuretic.  If the nephrologist suspects kidney damage he might want you to get a kidney biopsy.
My condition was brought under control and I have not had problems for almost 5 years but will take some meds for the rest of my life.

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 9/24/2010 9:28 AM (GMT -6)   
Hi! Jenny,
Me, too! and evaluating kidney function is very, very important in people with lupus. I have had lots of 2+ pitting edema in both lower legs, where my ankles are as wide as my thighs and if you poke your fingers in, the finger prints stay for weeks!!! Ask your dr. to check your vitamin B12 levels. Mine were horribly low, and I was shocked by how much the tablets helped reduce the swelling, and the frequency of days when I live in flip flops. My neurologist picked right up on it, I actually took a cell phone picture of my lovely sausage feet, and said that B12 is very important to the nervous system. I have had to take lasix , too

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and  Ambien every night.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 9/24/2010 8:52 PM (GMT -6)   
I have lots of fluid off and on. Usually one of the first signs that my kidneys are deciding to get worse! Donna is right, lower your sodium intake should help a bit and try to keep your feet up as much as you can. I am one of the few that lasix actually clog me up more and cause even more swelling so we generally do a strict diet change and with lisinopril and a prednisone raisev (by doctors orders) it seems to do the trick! You are right, once it gets so bad...the pain hurts and its not a pain you can get rid of until the fluid goes down! Hopefully by now you have found some relief!
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!
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