Extremely high SED, very sad and afraid

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New Member

Date Joined Sep 2010
Total Posts : 6
   Posted 9/22/2010 1:40 PM (GMT -6)   
Hi I'm new here. My Rheumatologist called me today and told me my lab results indicate MCTD and sclerdoma. But the worst part is my sedementation rate was 124 and she wants to rule out cancer of the blood and is sending me to a hemotologist. I only have joint pain as far as symptoms go. But what I want to know is if high sed rate over 100 means I have cancer? Does the SED of 124 indicate cancer? Whatever experiences you can share will help. I feel healthy for the most part but because of this very high SED rate I'm wondering if I'm about to die! I'm terrified also my RNP = 8.0



Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 9/22/2010 4:10 PM (GMT -6)   
Sed rate is strictly a measure of inflammation. Cancer does not usually cause inflammation -- so there should be no reason to suspect it because of this test.
IGNORE THIS PART, I had a brain fart! said...
As for the measurement you have -- sed rate is almost always expressed in a titer - such as 1:124 -- and this is a relatively low number, It goes 1:32, 1:64, 1:128, 1:256, 1:512, etc. Some places consider less than 1:64 to be a negative rate.

Please try to stop worrying and set up an appointment so your doctor can go over your test results with you.

[quote]Sed rate, or erythrocyte sedimentation rate (ESR), is a blood test that can reveal inflammatory activity in your body. A sed rate test isn't a stand-alone diagnostic tool, but the result of a sed rate test may help your doctor diagnose or monitor an inflammatory disease.

Today, the test is most often used if your doctor suspects you have one of the following diseases:
* Rheumatoid arthritis, which causes inflammation of the lining of joints and results in pain, joint damage and joint deformity
* Polymyalgia rheumatica, an inflammatory disorder that causes widespread muscle aching and stiffness, primarily in your neck, shoulders, upper arms, thighs and hips
* Giant cell arteritis (GCA), or temporal or cranial arteritis, an inflammation of the lining of your arteries that can cause headaches, jaw pain, and blurred or double vision.

Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Post Edited (Lynnwood) : 9/23/2010 9:08:04 AM (GMT-6)

New Member

Date Joined Sep 2010
Total Posts : 6
   Posted 9/22/2010 4:38 PM (GMT -6)   
Thank you so much for responding to me, I just learned this today and someone on yahoo answers said if your SED rate is over 100 it means you have cancer. But I do realize lots of ignorant people post their opinions on there. My Rheumatologist is sending me to see a blood specialist to rule out a blood disease, however she says that the results are pointing to MCTD and sclerdoma. But because she has me now going to a hematologist, it worries me.

Regular Member

Date Joined Apr 2006
Total Posts : 46
   Posted 9/23/2010 7:18 AM (GMT -6)   
Hi Nicki! Just want to welcome you here and say I know how you feel just wanting a diagnosis. When I first got diagnosed with lupus was when I had to be admitted to the hospital in icu for pericarditis and pleurisy with percardial effusion. My sed rate was 150 at that time. It took a long time for it to get lowered. After being on prednisone for several months it finally went down to 100. My doctor told me about 3 years after the initial episode that my sed rate was in the normal range for the first time. I think your doctor is just trying to be cautious and check all possible situations. Just rest assured that things will be figured out and then he can work on making you feel better.

Post Edited (vanae) : 9/23/2010 7:18:56 AM (GMT-6)

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