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Veteran Member

Date Joined Jun 2005
Total Posts : 541
   Posted 9/22/2010 2:29 PM (GMT -6)   
I posted a couple of months ago about how I get hoarse all the time and I was linking it to flaring.  Well twice in the past month I have gotten very hoarse for several days and can't work because I can't talk and am extremely fatigued.
Yester day I went to rheumy and she confirmed that I am indeed flaring.  She said that there are small joints in our voice box and they are being affected.  She asked me if I was still taking methotrexate and I told her I had stopped a couple of months ago.  She freaked out and told me that I can never stop taking it.  She said that connective tissue diseases can cause life threatening conditions and that the mtx was keeping it at bay.  She said that is what is going on with my hoarseness.
Needless to say I am back on the mtx for life.  She scared me into it. :-).  Also, got a steroid injection.  I guess I sometimes just try to pretend I am not as sick as I am.  Still have to work full time so I guess I better take my medicine the way I should so I can.
Mary Ann

Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo

"No matter what happens, God is in control. He is God, I am
not, what a relief!"

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 9/23/2010 9:17 AM (GMT -6)   
Hi Mary Ann. I think we all go thru those times when we think we are taking way too many meds, or think our lupus is under control enough to stop meds. You certainly aren't alone. All the same, listen to your rheumy and take your meds as prescribed. I take 13 different meds and periodically wish I could stop some, but my docs will not budge. Hopefully by taking your mtx you will not need to be placed on a stronger med. Take care of yourself Sweetie. Love, Butterflake
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