Hi jdrea. Before being diagnosed with lupus, the docs thought I might have MS, then they thought is was psycosomatic (that went over real well). I have always had lots of central nervous system problems. Tremmors, jerking movements, numbness over various areas (it travels), vertigo, stuttering, weak legs (my legs give out from under me) and staggering. I fall so often I must use a cane or walker depending how unsteady I feel. I have colitis and was hospitalized for a partial bowel obstruction last month. I also had a car accident a couple of weeks ago because my spatial reasoning was off and I drove over a curb onto the sidewalk resulting in a flat tire and my truck out of alignment. I had sinus surgery last April which helped with my sinus infections, but not the staggering. I also have sexual problems (like many here on the forum). It seems like the only thing we don't share are your optic inflamation and frequent urination. I hope you're going to see a urologist for that. BTW optic inflamation is also a symptom of lupus.
I started taking the drug Cellcept almost 2 years ago and it has changed my life. It has drasticly reduced my tremmors, jerking movements, numbness, and stuttering. Anyway, I'm telling you all this to helps calm your fears. You're not alone and there are treatments. The downside is Cellcept is a chemo therapy drug so you must try lots of others before they use Cellcept. I'm sorry this is so long, but I just don't want you to think you're alone. Love, Butterflake