newbie waiting for diagnosis qestions.

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maymay
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/26/2010 11:22 PM (GMT -6)   
For the past year I have really felt awful joint and bone pain feeling like i have the flu all the time. I have a family history mom- lupus and RA uncle-lupus grandmother- RA. PCP checked my crp it has high 18.4 and sed rate was high don't remember the exact #. Starting 2 months ago I started running low grade fevers nightly, had wbc checked it is fine, also have vitamin d defiency i take 50,000iu weekly. i also have elevated prolactin level from meds for gastroparesis. Can't get in to see rheumy until December. I also started having seizures 3 years ago. has anyone experienced seizures with their lupus. Is a crp level of 18.4 really high or just slightly elevated? right now all they are doing is giving me pain meds which don't really help to much. they tried me on mobic but my stomach couldn't handle it. Just really frustrated supposed to start nursing school in August and really wanted to get everything figured out before then. Did it take long for ya'll to get your diagnosis. It took my mom 4 years. Don't know if my nerves can handle that. would appreciate any feedback. Also is there anyone that has lupus and RA. cry sad

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/27/2010 1:09 PM (GMT -6)   
I have lupus and RA it took more than 14 years for me to get a dx. I doubt all will be figured out in time for next August. I wish I could type more but am shaking really bad.

maymay
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/27/2010 1:19 PM (GMT -6)   
:-)  thanks for your reply. You will be in my thoughts and prayers. Have a blessed day.
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