leaving healingwell...good luck everyone!!

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Veteran Member

Date Joined Aug 2005
Total Posts : 590
   Posted 9/29/2010 6:19 PM (GMT -6)   

I hope you all are doing well. As you know I am not on here much anymore and when I am not many respond. I am saying goodbye and wishing you all well. It has felt as though there are "cliques" here and I took much needed time off. I know I don't fit in here so farewell and best wishes to al. I hope all have wonderful experience here and support that is needed.


Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 9/29/2010 8:03 PM (GMT -6)   
I am sorry that you feel unsupported. It is always sad when people leave, especially when it is over something like what you are saying you feel. I wish I thought I could say something to change your mind.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 9/30/2010 1:55 AM (GMT -6)   
I'm usually in the Shadows, but I'm piping up...

I can see what you mean, however, its usually just the same person posting various issues. On this site, the groups our like a family. We nay and yay at each other. Please don't leave hon, you are more than welcome to stay. I always treat ok 99 percent treat all the people nice and fair, well when I do speak LOL. Like I said, I'm usually Lurking In the Shadows, a reader yet not much a talker. I have gotten much support from this group, and I don't even have lupus. I have a very rare autoimmune disease that just happens to be treated the same way as lupus and this group yet still welcomed me. Remember, no one should make you feel inferior. (sp?). Hugsss I hope you stay with us. Love, Desiree
Don't Care Bout Nuffin No More, Guess I shouldnt even be in this world

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 9/30/2010 5:18 AM (GMT -6)   
Sorry you have not found the support you are looking for! I agree, this group is like a family which will probably be the cliques you are talking about, which take work on both sides! I hope you will stick around and give us another chance...hopefully your posts will remind everyone to be more supportive and caring to everyone and not just a few people! Also, mabye the questions you have posted have been tricky questions or questions people arnt sure how to answer? I know when I usually see a post about having a hard time or in a flair from almost anyone...there are several responses, when it comes to the questions looking for questions about blood work or disease activity, they answers are much less depending on the question!
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 10/1/2010 7:19 AM (GMT -6)   
Hi Leta. I really wish you'd reconsider. It seems we have lots of luwpies (new lupies) recently I'm sure they'd love to hear from you. I'd love to hear from you too! How are your flares? How are doc visits going? Any new symptoms? Anything would be great. I must say I didn't realize you had taken hiatus, but I can't remeber much these days. Still if you decide to leave, I understand and hope you find a support group that's a good fit for you. Love Ya Sweetie, Donna
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