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New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 9/30/2010 4:13 AM (GMT -6)   
need some advice please new to this condition have dicoid wait till november go see demitoligest.
has anyone ever had hearing trouble with lupus due have a hearining test in october went other year come back again i know sounds strange.
had a seizure last year as well. need advice as im in the worst job possible care assistant elderly you can imagine how ill they can be?.
i havent told them yet till i habeen hospital in november.
got 2 very young kids. confussed
was sick last week think it was a school tummybug eldest girl started 1st year at school. dont now if its that or my lupus?

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 9/30/2010 8:31 AM (GMT -6)   
Hi Sweetie. I'm sorry to hear you have discoid lupus. It sure sounds like you have something else (including discoid) with your seizure and being in the hospital. It sounds like you should see a rheumatologist.  Rheumatologists are the docs that treat systemic lupus which many of us on the forum have. At the top of our forum is a post called "Resources." Read thru some of the info/links and see if any of it sounds like what you have. Welcome to our forum! Love, Butterflake

Regular Member

Date Joined Sep 2010
Total Posts : 26
   Posted 10/3/2010 12:34 PM (GMT -6)   
Oh hi and welcome. It definately sounds like you have something else. Discoid Lupus deals with skin issues hence u having ot see the dermatologist. But being hospitalized as well as having seizures with this disease sounds inconsistent.

You really should see a Rheumy or Another doctor even.

Goodluck tho
~The Happiest People Don't Have The Best Of Everything, They Just Make The Best Of Everything They Have~

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/3/2010 5:12 PM (GMT -6)   
siezures is one of the signs of systematic lupus but not discoid as far as I know.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Regular Member

Date Joined Sep 2010
Total Posts : 51
   Posted 10/4/2010 1:07 AM (GMT -6)   
I have discoid and systemic and it also sounds to me like you really should see a rheumatologist . There is probably more going on than just discoid.
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