Did you suspect your diagnosis?

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New Member

Date Joined Oct 2010
Total Posts : 1
   Posted 10/1/2010 10:35 PM (GMT -6)   
Hey all,

I'm new to the forums and am wondering how everyone knew or suspected something was wrong? What lead to the lupus diagnosis?

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/2/2010 4:23 AM (GMT -6)   
actually my husband suspected my dx long before I did.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Blue Wisteria
Regular Member

Date Joined Sep 2010
Total Posts : 39
   Posted 10/2/2010 6:28 AM (GMT -6)   
Hello to you,

For me it was the overwhelming fatique, you sleep and wake up just as tired. Plus, pains, aches and fevers---put me onto the Lupus/Sjogren's rollercoaster ride.

Health and Hugs,
Wishing a good day for all,

Lupus, Sjogren's, Athsma, Diabeties and RA

Plaquinal, Immuran, Rituxian, Pred, Cymbalta, Singular, Theophylline, Advair, Diovan, Mobic, Prandin, Lantus and Moraphine (as needed)

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 10/2/2010 8:41 AM (GMT -6)   
Gradually through out my day I started getting to the point to where I could hardly walk. By night i had to get help walking to my car from my work. My grandmother has severe RA so I thought that I had developed RA and went straight to a rhuemy. He did blood work and within a few weeks for the first time, I heard the word Lupus! So for me...the unbearable pain was my first key!!!
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 10/2/2010 12:20 PM (GMT -6)   
I was thinking maybe I had Chronic Fatigue Syndrome...I don't think I'd heard of Lupus or if I had I didn't know much about it! Of course, that was 10 years ago now and with Brain Fog who remembers? lol!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Sep 2010
Total Posts : 26
   Posted 10/3/2010 11:14 AM (GMT -6)   
I had no clue. Was a healthy 17yr old. Until gradually i started waking up with pains in my knees and joints...eventually during the day it would disappear.

But at the end of the day when i would lay on the couch watch some tv for a while..And when time to go to bed...i literally could not move...

So this lead me to my doctor..who ran some test..He thought it was J.R.A...but that test came back negative...so all. this time I was in pain..unable to get out of bed to go to the bathroom on my own..:(

So my doctor send me to a Rheumatologist who diagnosed me in about 2 weeks.
that's my story..

Had no clue what it was though..Never heard of it up to that point in time.
~The Happiest People Dont Have Everything, They Just Make The Bes Of Everything They Have~

Regular Member

Date Joined Jan 2010
Total Posts : 42
   Posted 10/3/2010 2:14 PM (GMT -6)   
No, I found out completely by accident. I was in the hospital for something completely unrelated and my ANA was positive-my doctor mentioned it and said it might be something worth checking out cause I told him I was tired all the time. He referred me to a rheumy, but I shrugged it off. But within a couple of weeks I started getting joint pain and I had never had joint pain before, so I made the rheumy appt. He ran some tests, my ds DNA came back positive, plus protein in my urine and a few other things that pointed to Lupus. He put me on Plaquenil and I feel back to normal now. I was so lucky that I got a quick diagnosis.

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 10/3/2010 4:03 PM (GMT -6)   
Yes, I knew that lupus was rampant on my dad's side of the family (two of my paternal aunts died from complications of lupus, one of my daughters was dx with lupus, etc.). I also have RA, Hashimoto's thyroiditis, several other AI diseases....so I figured I had at least a 50-50 chance of developing lupus myself.

Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

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