Done with my ex-Rheumy!

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New Member

Date Joined Sep 2010
Total Posts : 6
   Posted 10/5/2010 12:38 PM (GMT -6)   
I have MCTD (lots of joint inflammation) and ever since I have been going to this Rheumatologist she is doing idiotic stuff! I know that sounds childish but it's the best phrase to describe what she is doing. I have some medical background and I have been researching a great deal of conditions and treatments. She had been sending me for various tests and I guess she is amazed when I ask her what are the indicators for her sending me for whatever test she wants done and she would mention something stupid, the reason I say it's stupid is because I tell her that my condition totally rules out her suggestion and she tells me what symptoms I have like, she'll say you had swollen lymph nodes and I reply "No, I only had this happen in one instance and that was a bad reaction to Oxaprozin that another Rheumy prescribed" after I was treated for the reaction in the ER the lymph node went back to normal and never resurfaced again! Then she said I had a virus, which I replied "Actually, NO I DIDN'T have a virus I told you that I had symptoms similar to a virus when I had the allergic reaction with the hives and the ER tested me for viral infections and it was negative" But I agreed to the chest X-ray she sent me for, for no good reason, which was negative and normal! I can't deal with her idiocy any longer! I also recently discovered that she is not even board certified as a Rheumatologist so she doesn't know what the heck she is doing. It's really sad when patients know more then the doctors who are treating them! She does not listen to me and she scheduled me for a consult with the hematologist so I called the hematologist and told them that I was canceling the appointment because my Rheumatologist had no indications for sending me to a hematologist just to go through all of their exploratory tests as well!

I hate this condition! I am waiting for my primary physician to come back from Maternity Leave because I am done with this foolish woman! Anyway she is only certified in Internal Medicine, the same as my primary care physician. The only difference is I like my PC physician because she is experienced and don't just send me for tests whenever the mood hits her. These doctors need to understand it is not cool to just send us for tests and have us all stressed out for nothing all the time. Besides the more unnecessary tests they send us for the higher the likelihood to get abnormal or false positives. I guess between me and my PC physician I will beat this on my own. Already I have been able to get off of NSAIDS completely since I started taking OMEGA 3 fish oil, Ginger and some other supplements that I was depleted from a fad diet I was on a few months ago. I have a good feeling that I will start to feel much better soon, as I do already.

Sorry for venting... just so frustrated!

Regular Member

Date Joined Sep 2010
Total Posts : 26
   Posted 10/5/2010 4:49 PM (GMT -6)   
I totally agree with you. It is really very sad when patients know more about their doctors! And i would get upset too. Idk about you but where I'm have to pay for all those test (if u doing it privately) and they can be expensive.. So i wud be pretty upset if my rheumy sent me for unnecessary test too...

My rheumy is always surprised when i ask him educated questions. I dont have a background like you do, but i do alot of research online as well as communicate with other lupus patients.

But I guess they not used to being challenged as doctors..and well us being patients (supposedly no background into this stuff)
~The Happiest People Don't Have The Best Of Everything, They Just Make The Best Of Everything They Have~

Regular Member

Date Joined Sep 2010
Total Posts : 24
   Posted 10/5/2010 5:55 PM (GMT -6)   
I completely understand what you mean... If it wasn't for my own research, I wouldn't have probably found out about my condition until it became much worse... My dermatologist actually ordered specific blood work and the results were abnormal... He informed me to take them to my pcp and she swore I my results were fine. Most blood work have medical terms most people wouldn't know, but there is a summary that is pretty self explanatory of what the abnormalities are in the test... and sure enough i did my research and all the signs pointed to lupus... along with my personal symptoms I knew it was all the lupus signs. So we should always do our own research; thank goodness for the internet!

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/5/2010 7:02 PM (GMT -6)   
I lucked out with my latest rheumy, he was shocked I suggested a medication that is being used at U of M because it is old and he had never used it but he was happy to look into my suggestion. Now other issues have come up that we have to wait to try the med but heck at least he is willing to listen to my suggestions his comment implied most of his patients don't bother learning anything about what is wrong with them. That is how some doctors get away with what they do.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

New Member

Date Joined Sep 2010
Total Posts : 6
   Posted 10/6/2010 12:36 PM (GMT -6)   
Thanks for proving to me that I'm not the only one. Some Rheumys are wonderful, experienced and considerate to our condition. But it's the ones that are sending us out to more specialists, who in turn have their own list of tests and meanwhile we're left worrying about the results on conditions we don't show signs of or have indications to be sent for testing. It comes a time we have to take back control, do some research and say no to unnecessary testing!
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