Hi all, I was diagnosed with lupus this year and have not been working due to loosing my job 3 years ago. I have been looking but no luck and my lupus flares are getting worse and now I have the onset of seizures, My rumy told me to file for disability but also wanted me to talk to my primary doctor and so I did and and my primary said he dosent think I will get it because he thinks I am very capable to work, except for the fact with having theseizures and not being able to drive, I told him that if I was working right now It would be very difficuly and I would probably loose my job again, (he just doesnt understand) I have days now where I cant get out of bed yet my primary says yes you can and get to work, how? I would like to know how he thinks I can get up and moving with my pain and stiffnees not to mention the weakness and fatigue, how can I work when I am like that and go into a 3 day streaght of sleeping where It takees everthing in me just to get up to go to the bathroom. I have no money to pay for my meds and for doctor visits, and if It wasnt for me living back with my parents I would not even have a home or food on my plate, god bless them, and its bad enough my Mum is in stage 4 bone cancer, we are to sickies trying to take care of each other. I guess what I am asking is for anyone with any advice on how to go about
it and if they even consider Lupus a condition that requires state aid? I am scared people telling me not even to bother because I wont get it, then what the hell am I suppose to do curl up into a ball and waste away? I am sorry about
this rant I just feel hopless adn scared not knowing when or if I ever get my next med the ones I need to feel well and function, lord help me!