Help with disability questions

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Regular Member

Date Joined Aug 2010
Total Posts : 112
   Posted 10/8/2010 10:51 PM (GMT -6)   
Hi all, I was diagnosed with lupus this year and have not been working due to loosing my job 3 years ago. I have been looking but no luck and my lupus flares are getting worse and now I have the onset of seizures, My rumy told me to file for disability  but also wanted me to talk to my primary doctor and so I did and and my primary said he dosent think I will get it because he thinks I am very capable to work, except for the fact with having theseizures and not being able to drive, I told him that if I was working right now It would be very difficuly and I would probably loose my job again, (he  just doesnt understand) I have days now where I cant get out of bed yet my primary says yes you can and get to work, how? I would like to know how he thinks I can get up and moving with my pain and stiffnees not to mention the weakness and fatigue, how can I work when I am like that and go into a 3 day streaght  of sleeping where It takees everthing in me just to get up to go to the bathroom. I have no money to pay for my meds and for doctor visits, and if It wasnt for me living back with my parents I  would not even have a home or food on my plate, god bless them, and its bad enough my Mum is in stage 4 bone cancer, we are to sickies trying to take care of each other. I guess what I am asking is for anyone with any advice on how to go about it and if they even consider Lupus a condition that requires state aid? I am scared people telling me not even to bother because I wont get it, then what the hell am I suppose to do curl up into a ball and waste away? I am sorry about this rant I just feel hopless adn scared not knowing when or if I ever get my next med the ones I need to feel well and function, lord help me!
Scared sicker

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 10/9/2010 12:49 AM (GMT -6)   
Yes, lupus is a condition covered by USA Social Security Disability If your rheumy is advising you to file, that indicates s/he will support your claim and certify that your condition(s) warrant disability. Doesn't matter so much what the primary thinks -- focus on getting your paperwork filled out using the rheumy.

There is a very good chance you will be approved. Lupus is treated by rheumatologists (I don't know the specialty of your primary dr, usually they are internists, not lupus specialists.) SSD had me see their rheumy as part of the approval process.

Get the info from the SSD website and start gathering the documentation they ask for -- because it's certain you will not get anything if you do not apply!

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Aug 2010
Total Posts : 112
   Posted 10/9/2010 6:05 AM (GMT -6)   
Thank you Lynnwood for all the helpfull info, I am going to get stared on this I will keep you posted.

Thanks again

Kat10 :)
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