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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 10/9/2010 4:50 PM (GMT -6)   
ok, I've been back on cellcept (generic this time) after a 3 year break (from name-brand).

All week I've been overstressed - since starting the ramp up (3 days now) w/cellcept I've had a temp (100.5) and feel like I'm about to feel nauseous. Only taking one 500 mg tablet in the am with food now.

Brain fog - can't remember about reaction last time I took it --

are temps & blah normal for the first few days of cellcept?

thanks
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 10/9/2010 7:29 PM (GMT -6)   
I have been on CellCept for about 14 months (name brand for the first 3 months and generic since then). My prescription was (and remains) two 500 mg tablets twice a day. When I first started I had the same reaction as you describe. So my rheumy had me back off to one tablet once a day. He had me increase the dosage each week (took about a month) until I was at full strength. That seemed to do the trick. But I do take it on a completely empty stomach (at least two hours after eating and one hour before eating). I do not know if taking it with food would cause a different reaction or not. Once I adjusted to the medication, it really helped my lupus symptoms. Hope you feel better :)
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

anna24
Regular Member


Date Joined May 2009
Total Posts : 27
   Posted 10/10/2010 6:48 AM (GMT -6)   
I noticed that each of you have taken both generic and regular cellcept. Is there a major difference? I just started on it one week ago. My insurance
automatically gave me generic. So far, no side effects. I take 1000mg with food. I guess it takes about one month to take effect. I hope you feel
better soon. Take care.
SLE, vasculitis, methotrexate, plaquenil, dapsone & the usual supplements

vanae
Regular Member


Date Joined Apr 2006
Total Posts : 46
   Posted 10/10/2010 7:04 AM (GMT -6)   
 I have been on cellcept name brand for one year. I get my med through the patient assistance program. I take 3 500 mgs tablets twice a day. I dont really remember any side effects for me. Hopefully yours will be short lasting. Maybe something in the generic is bothering you?  

vanae
Regular Member


Date Joined Apr 2006
Total Posts : 46
   Posted 10/10/2010 7:07 AM (GMT -6)   
Just wanted to add. I dont know if it makes a difference but I also take it on an empty stomach cause thats what my directions say.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 10/10/2010 10:01 AM (GMT -6)   
I should re-read my directions, I guess. lol
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 10/10/2010 7:18 PM (GMT -6)   
anna24 said...
I noticed that each of you have taken both generic and regular cellcept. Is there a major difference? I just started on it one week ago. My insurance
automatically gave me generic. So far, no side effects. I take 1000mg with food. I guess it takes about one month to take effect. I hope you feel
better soon. Take care.


Other than price, I have not noticed a difference between brand name and generic.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/12/2010 6:25 AM (GMT -6)   
Hey Lynnwood. Sorry about the side effects. I've been on cellcept so long I can't remember the start up problems. Oh, I do remember that I started with name brand. Love, Donna
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