weight loss surgery

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/11/2010 2:34 PM (GMT -6)   
my weight loss surgery is finally scheduled for the 27th with preop the 25th and post post the 8th. I can't believe it is finally happening.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/12/2010 5:45 AM (GMT -6)   
Congrats Redrose tongue   Mine is scheduled for Nov 18th. Love, Butterflake

vanae
Regular Member


Date Joined Apr 2006
Total Posts : 46
   Posted 10/12/2010 3:01 PM (GMT -6)   
 Hi Ladies. I want to wish you much success with your weight loss surgery. My husband had lap band surgery and lost just a little weight but he had complications. The port where they would give him a fill developed a hole and all the fluid came out so immedietly he felt the no restriction in his stomach.They gave him another surgery to replace the port ,well a short time later his port somehow flipped in his stomach and now they cant put more fluid in. They want him to have another surgery to repair it but he said no more. He didnt do very well or make a good candidate because his head still told him to eat and he didnt follow the diet changes that are required to be successful. 
My brother had gastric bypass and he also didnt lose weight because he just grazed all day instead of eating big meals so ended up consuming the same calorie wise. 
I think that you ladies sound excited and are prepared for doing what you need to do. I know there are lots of people who have great success and have faith you will be another 2 to add to the list!
I lost weight before lupus by watching my diet, eating 5 small balanced meals a day, and walking 5 miles a day and shed 160 pounds. But now with using prednisone for 4 years and the great lack of exercise I have the battle once again so I know how you feel . Lets just never give up on ourselves and keep on trying.We are worth it!
 

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 10/13/2010 6:58 AM (GMT -6)   
Hi Vanae. I'm having gastric by-pass and have already bought some of the foods I'll need at first. I've also eliminated almost all diet soda, a real passion of mine, per their recommendation. I was a runner for 20 years (pre-lupus) so I hope I can draw on some of that will power to make my by-pass a success. Thanks for the stories! Love, Butterflake

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 10/14/2010 10:44 AM (GMT -6)   
Woohoo ;) Glad both of your dates are coming up very quickly! I sure hope the surgerys are successful and you acheive some great results :)
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/18/2011 2:46 PM (GMT -6)   
I have just learned that our member, Redrose77, died Dec 12 from complications related to her lap band surgery. I have no further information and will let you know if I find any.

I just checked in on Butterflake (Donna) and she is still sedated & on the ventilator. However, they have been able to decrease the amount of oxygen - that's what happens as you are slowly weaned from the ventilator. So she is in slightly better shape than earlier in the week.

Please, please,please, no matter WHAT the doctors say -- DO NOT HAVE THIS SURGERY DONE - with our illnesses the risk is very much NOT worth it.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 2/18/2011 5:01 PM (GMT -6)   
lynwood this devastates me beyond belief.. I cannot believe this im heartbroken.. i just dont know what else to say
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 2/18/2011 5:07 PM (GMT -6)   
Oh I am so sorry. My thoughts and prayers go out to Redrose's family. Thank you for letting us know.
And I will continue my prayers for Donna and her family.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/18/2011 5:25 PM (GMT -6)   
Yes, it is quite horrid and shocking. I'm not far from totally speechless myself.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 2/18/2011 5:49 PM (GMT -6)   
I too have no words! I am in shock and struggeling with this! My heart fell when I read what you wrote! I will be praying for the families!!
Amy
Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/18/2011 6:29 PM (GMT -6)   
I can't believe this.  I'm not sure what to say either.  This is shocking.  I'm glad to hear that Donna is making positive steps in her recovery. 
Moderator of Lupus and Fibromyalgia forums

37 years old, diagnosed in 2000. SLE, Fibromyalgia, APS, Sjogrens, Raynauds, Thrombocytopenia, Vasculitis, Stroke – 2002, Bilateral sacroilitis, Clinical Depression/PTSD/Anxiety/panic disorder, Optic Neuritis. Prednisone, Cellcept, Plaquenil, Coumadin, Cozaar, Zoloft, Didrocal, Seroquel

vanae
Regular Member


Date Joined Apr 2006
Total Posts : 46
   Posted 2/18/2011 7:56 PM (GMT -6)   
I too am very saddened by this news. I have thought often about her and wondered how her surgery went. I was always watching for a post from her. Makes me sad for her children and family. Such loss in her quest to improve her quality of life. My thoughts and prayers for her family.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/18/2011 8:14 PM (GMT -6)   
I am in shock and my heart breaks for Redrose family. So glad to hear Donna has improved some, prayers being said for both families.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/19/2011 3:50 PM (GMT -6)   
I have been able to find out just a very few details, but there doesn't appear to be an online obituary anywhere.

Redrose77
Kaitlin Anne Scardo
July 28, 1977 - Dec 12, 2010

You were a valuable member of the Lupus Forum here at Healing Well and we will all miss you. I hope you are comfortable now and have left all earthly illnesses aside. In Peace.

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 2/19/2011 6:16 PM (GMT -6)   
Thank you, Lynnwood, for those good words.

emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 2/19/2011 9:22 PM (GMT -6)   
Amen.

emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 2/23/2011 3:43 PM (GMT -6)   
Lynnwood, thank you so much for taking the time to share this with us. This is very sad. Redrose was such a sweet person that had such a positive and uplifting nature about her. I know we will all miss her deeply... my heart aches for her family.
Dx: IBS, Diverticulosis, Idiopathic Acute Colitis, SLE, Sjogren's, Localized Scleroderma, Raynauds
 
Meds: Plaquenil 400mg/day, Pred 5 mg/day, Topamax 100mg/day, Lodine 500mg/day, Protonix 40mg/day Methotrexate 10mg/week, Arava 20/mg (what next???), Vicoprofen PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 2/26/2011 7:33 AM (GMT -6)   
Hi,
It is a blessing, not only to get to know each other on this forum, but to care for each other through this forum. In the sad times, and the better times. I appreciate being told of her passing, as I too, worry about people I "met" when I first found this site. I will miss her, too. I am grateful to our forum moderators and Peter, for their comittment to both beginnings, and endings.
suetoo

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and  Ambien every night.

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1950
   Posted 3/1/2011 6:20 PM (GMT -6)   
Im so sorry to hear this. Much love to you always, Redrose! And much love to you, Donna, as you recover, hopefully you are doing much better now.
Love, Marji
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

giannarazi
New Member


Date Joined Mar 2011
Total Posts : 14
   Posted 3/3/2011 8:13 AM (GMT -6)   
Okay. Let me compose myself and I will be right back ha ha.

giannarazi
New Member


Date Joined Mar 2011
Total Posts : 14
   Posted 3/3/2011 9:24 AM (GMT -6)   
Ok I am finally back. Sorry. I am Redrose's best friend. Let me answer some of the questions for all of you.

Her husband says he didn't know what happened and says she went to the hospital for the surgery. She was doing fine afterwards and was sent home. Then within a few days she was vomiting and had diarrhea. Redrose couldn't keep anything down, so he took her back to the hospital. They kept her there for a week and she was scoped they said they found a pocket of infection as well as a hole in her stomach. Hospital said the hole was supposedly caused by the prednasone. The doctor placed a stint and she was sent home next day. Two days at home she seemed to be doing well, a bit tired but nothing her husband was worried about. Later she said she was thirsty so her husband helperd her to get some water and she said she was nauseous and had the onset of a migraine. So he gave her some medicine for that and put her to bed. He checked on her a few times , and tried to get some sleep. He said the power had been out so that was all he could do. During the night he went to check on her and she wasn't breathing, so he tried to do cpr, but wasn't able to help her. He called 911, medics arrived and checked her, and he was told she had already passed.

I left out the rest of the email as it was personal, between him and I. Again I do apologize. I did personally join the board for these very reasons. I had spoken to him about where she was online as we both knew she was active in groups and I knew she had a journal somewhere etc. He mentioned "Healingwell" and I googled it and it came up this site.

giannarazi
New Member


Date Joined Mar 2011
Total Posts : 14
   Posted 3/3/2011 9:31 AM (GMT -6)   
So let me catch up so far - We are still waiting on toxicology reports and the autopsy has not found anything. We are not knowing why this has happened. I know Lynnwood is advising not to do this and advocating caution and it is a good idea. YET - we all should know that Redrose's doctor did give Kait a clean bill of health to go with this surgery. Kait wanted this to TRY to prolong a few more years for the kids. Yes, I had my own reservations and YES, her husband loved her no matter what, but we all know how stubborn Kait was anyway ha ha. We cannot fault her for wanting to be around longer for her kids and we cannot fault her for wanting to eliminate her weight to alliviate health concerns and prolong her health so she could have years to her life for her kids and be with her loved ones.

Yet, I guess it was not meant to be - so none of us have her anymore and I do not have my best friend anymore. And I do miss her every day.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/3/2011 9:35 AM (GMT -6)   
Thank you for the additional information. One of the biggest issues with lap band surgery for those of us with Lupus has to do with the number of medications we have to take to control our diseases. And the power of these medications as well.

Unless our meds are ground up and taken more gradually in a powder form, the relatively huge amount of medication taken at once in our normal meds is too much for the newly formed stomach and causes issues rather quickly.

This is almost identical to what happened with the stomach of another HW member. They found an infection and a small ulcer just below her new stomach -- still in the area where the surgery invaded. And she *was* taking it easy with her meds,but thought it was safe to stop a probiotic as she'd been doing well. Turns out the probiotic was MORE necessary than usual with the smaller stomach. Donna has now been in the hospital on a respirator for over 3 weeks.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Post Edited (Lynnwood) : 3/3/2011 10:34:59 AM (GMT-7)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/3/2011 9:40 AM (GMT -6)   
PS. In both cases the doctors were fully approving of the lap-band surgery, and in no way was I suggesting anyone was "at fault" for wanting this done - I know both did extensive research and made sure ALL their doctors agreed before going ahead.

As always, every post on these forums is the personal opinion of the poster, and is not to be constructed as medical knowledge or anything "professional". Always check with your own doctors before making any decisions.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

giannarazi
New Member


Date Joined Mar 2011
Total Posts : 14
   Posted 3/3/2011 11:29 AM (GMT -6)   
darn it!! I knew it was the doc's fault!! I knew it!!! See what prolonged them doing the autopsy for SO LONG is the doc didn't sign off on the certificate (she still hasn't been buried as of yet as they are still doing toxicology and haven't released the body yet) so everything has been a mess. So this is why there isn't any obit yet. But when they did do autopsy they didn't find anything. Well of course, they didn't find anything, they waited too long. So I'm sure toxicology won't find anything period. It's been way too long. I won't bother telling her husband the information as he did say he wanted to move on, but I know he misses her so much too. I know Kait talked about probiotic meds to me for a long time with migraines and yeast infections especially with heartburn and assorted other issues, but I do not have Lupus like she did. I just know she worried over me and was always mindful to fuss over me like she did all of you too. I am taking online classes at the moment, so I will be back and forth and will continue to be on the forum and will probably come across many of her posts and will more than likely reply to them even though they are old ha ha.
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