Hey Jess! This really hits home for me. about a year ago (when i was 22) I got horrible joint pain. I couldnt even get out of the bath tub without help or had to get help when I was sitting down and standing up, washing my hair, etc... PLEASE and I mean PLEASE don't give up. Better days will come around. What medicines are you on to help with the pain/lupus? I have been on every medicine known to treat lupus besides methotrexate and none of them worked until we tried Cyclosporine, which is very seldom used. This has been my miracle drug. Maybe you could talk to your rhuemy about it. It has taken away about 70% of my pain and made life a bit easier than it was.
You have done the right thing by reaching out and finding support in places away from home! Have you thought about going to a Lupus meeting by your local chapter? I have been to a few and they have been a great resource for me. Also, if you haven't lookin up the spoon theory and let your family read it. This is one story that helped my family understand a little of what I feel on a day to day basis. If you ever want anyone to talk to, please email me or post here! There are a lot of caring and compassionate people on this site and they can relate to some of your struggles!!!
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran
If God brings you to it, he will get you through it!!