Dear whoever reads this, i wanted to thank you all for your help. it all seems like a bad nightmare when i look back on it, and i don't know if i would have gotten through it without you guys !! i guess i was having a flare up for longer than i knew..... i had just accepted it as.....life?
i was getting IV solu-medrol daily for a few months (which is i believe when i joined this forum?? don't remember and it seems my brain took a big hit.....so.....i can't ask it...hahahaha)
and then i had my IV port surgery and about
a week after that (or a bit more) my body started to calm down. (i think it was the IV pumps) alot has happened since then (scary) but i just wanted to say
THANK YOU !!!!!!!!
this is the best i have felt in 5 years. and i am super thankful. i still have pain but not inhumane.
i got my first treatment of IVIG as well 2 fridays ago. i am still on oral steroids but the last time i got IV solumedrol was over ONE WEEK AGO ??????????
i was wondering if this day would ever come?
i am glad i stuck around............thanks to you guys. i really appreciate every single one of you.
thank you for having this forum and thank you for YOUUUUUU. : ) !!!