Prayers and good thoughts for Barb please!

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/21/2010 3:00 PM (GMT -6)   
I'm very worried about our Barb. She is in the emergency room right now. She's had several ports put in her chest in the past couple years with no real success. They decided last week to put one in her arm on the inside of the arm where it bends but not in the bend it self. Well her are has continued to swell and be cold and numb. Now it's swollen all the way from her elbow to her finger tips. she can't even make a fist or feel her hand. They ran some test or MRI I don't remember exactly what but they found out she has a blood clot! shakehead . She doesn't know what they will do but I am pretty sure that with a blood clot they would NOT!!!!!! just give her some baby asperin and send her home. Anyway as I'm sure you know these blood clots can be very serious so again I ask for your  prayers and best wishes. I'll keep you in formed she is supposed to let me know as soon as she knows what it is happening.
God bless

Post Edited (okie) : 10/21/2010 4:14:50 PM (GMT-6)

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/21/2010 5:16 PM (GMT -6)   
update it was an ultra sound they gave her and yes they did admit her to the hospital. She should be in her own room with in the next 2 hours. but you know how the ER goes and at a military hospital at that.

citracal,pottasium,vitB12 ,iron,xopenex,advair,spirivia,soma,b12 shots,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high bp COPD, need left lung transplant. cervical cancer survivor, osteoporsis, Jesus is a friend of mine.
"We come into this world crying while all around us are smiling. May we so live that we go out of this world smiling while everybody around us is weeping."

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/21/2010 6:27 PM (GMT 0)   
Barb is always in my prayers and Ihope they do more than baby asprin
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 562
   Posted 10/21/2010 10:46 PM (GMT -6)   
Barb is feeling very weak and is experiencing alot of pain in her arm. The blood clot runs from her armpit to her elbow and they are giving her Lovanox (sp) blood thinner shots in her belly. Her white blood count is elevated and they think she has an infection (possibly in the bladder) and is also on IV antibiotics. Will discuss with the doctors in the am about getting a blood transfusion.

Barb is grateful to everyone for your thoughts and prayers.


Veteran Member

Date Joined Apr 2004
Total Posts : 1205
   Posted 10/22/2010 1:19 AM (GMT -6)   
Thanks for the updates on Barb, I tried calling her at home today and didn't get an answer. I thought something must be wrong because when we talked last she wasn't do well. Barb you know your always in my you sis i'll be in touch

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/25/2010 12:47 AM (GMT -6)   
Just so you know Barb is home.! She is still very swollen and hurting but they have her on blood thinners to get rid of the clot. Praying she heals fast and can get a round of blood transfusion she is in need of. devil Hollloween! Just kidding but she does need a transfusion. I have had them I hated it! gross I don't know how dracula did it!
love ya all

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 10/25/2010 5:44 AM (GMT -6)   
YAY!! Thank you for letting us know how she is doing. I hope her swelling goes down and the pain gets better!!! Love you Carol and Barb!
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Regular Member

Date Joined Sep 2010
Total Posts : 51
   Posted 10/29/2010 8:17 AM (GMT -6)   
Sorry, haven't been on in a couple of days. I hope Barb is much better. I will def keep her in my prayers. God Bless you all.
SLE, Discoid lupus, acute cutaneous, acute vasculitis and sjogrens

Prednisone, ultram, mobic, cellcept, plaquinel and ambien.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 10/31/2010 6:46 PM (GMT -6)   
Hi All:

Yep I'm home from the hospital. My arm is looking much better. I've had a lot of water retention in 8 days I dropped 18 pounds. However, I need to stop the water pill as my potassium is at a dangerously low level. My Doctor just called me from her home and it's 7:45 pm here. She was suppose to see me on Monday bad had to change the date. So until I have more labs done no water pills.

As for my blood clot I'm giving myself 2 shots of lovenox twice daily. Good thing I'm not queasy at doing that, hubby would run yelling from the room if he had to do it. Overall, I'm still feeling sick I know I need a blood transfusion but the docs are holding out on me. Maybe when I see Dr. Byars on Wednesday she'll agree that's what I need and order it for me.

Thanks for all your prayers and blessing and great energy. Hope you all are doing ok and not having to many pain filled days. Take care and know I appreciate each and everyone of you.


Blue Wisteria
Regular Member

Date Joined Sep 2010
Total Posts : 39
   Posted 11/3/2010 6:35 PM (GMT -6)   
Will keep her in my prayers...................................

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 11/7/2010 1:57 AM (GMT -6)   
I feel bad for having disappeared for so long. Barb, so sorry your battle with all of this continues, but am glad to hear that you're back home. Carol, you're always so good to keep everyone informed about Barb. I hope you're doing ok.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.
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