ear and jaw pain ? glandular

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New Member

Date Joined Oct 2010
Total Posts : 5
   Posted 10/22/2010 5:45 AM (GMT -6)   
I have a four year history of joint pain , terrible fatigue etc , which I was under the care of the rheum for , since april this year my symptoms have become steadily worse. Such as raised pink bumps on my forearms that look like plump insect bites but aren't , they stay for around 8 weeks then scale and leave a faint mark . I have around 2 or 3 on each arm . Since june my mouth became dry , and my eyes are gritty and red too , and my tongue is sore at the back on and off , but it appears pink and healthy when u look at it , drinking cold water seems to soothe it a little . However for the last month I have had a full feeling in my ears , sometimes they itch deep inside in the morning too , then I get these sharp shooting pains around my ears and jaw , and sometimes these shooting pains go under my arms and groin , wondering if its glandular ? . I do have what feels like one 2 cm gland under my left ear , but its not painful to touch . I also have a sore throat which comes and goes frequently. Also for the past 4 years I have had pins and needles in my face legs and hands and ulner nerve compression . I saw a new rheum in july and was RO positive , esr slightly raised too , and my HB was 12 . He suggested repeating them in 6 months !! I am at my wits end , very depressed , missing time from work etc , does this sound like lupus ? . Just as an added bit of info I had severe juvenile arthritis as a child too . Be lovely to hear from anyone with any advice or information .

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/25/2010 1:03 AM (GMT -6)   
Hi hun, it sounds like at least part of it is sjogrns symdrome. which many people with lupus have it and it is auto immune. here are some of the symptoms.

Dryness of the mouth and eyes are the most common symptoms of this syndrome.

Eye symptoms:

•Itching eyes
•Feeling that something is in the eye
Mouth and throat symptoms:

•Difficulty swallowing or eating
•Loss of sense of taste
•Difficulty speaking
•Thick or stringy saliva
•Mouth sores or pain
Other symptoms may include:

•Change in the color of hands or feet
•Joint pain or joint swelling
•Swollen glands

Sorry I didn't reply sooner. I hope you find some one that can help you. and also welcome to the family!
citracal,pottasium,vitB12 ,iron,xopenex,advair,spirivia,soma,b12 shots,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high bp COPD, need left lung transplant. cervical cancer survivor, osteoporsis, Jesus is a friend of mine.
"We come into this world crying while all around us are smiling. May we so live that we go out of this world smiling while everybody around us is weeping."

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 10/25/2010 9:30 AM (GMT -6)   
Hi Jases. Autoimmune diseases are a strange lot to be sure. I saw a rheumy for over a year before he would diagnose me and that was only because I argued that I had two positive anti-double stranded DNA tests. Getting to that point took two years of many symptoms. If you don't agree with your rheumy consider seeing another. I agree with Okie that some of your symptoms sound like sjogrens.
More importantly, you really should see your primary care doc asap. You may have something else. Let us know how it goes. Love, Butterflake 

New Member

Date Joined Oct 2010
Total Posts : 5
   Posted 10/25/2010 9:51 AM (GMT -6)   
Thanks sooooo much guys , its very difficult trying to explain to people how unwell u feel , is it me or does anyone else get the impression from some doctors that they think we are neurotic hypochondriacs ? . It seems at the moment I am having to do my own research to come up with any answers . The rheum I saw did mention sjogrens but has not suggested investigating further ... . Arghhh !! . I have now been referred to the specialist centre in london for a second opinion . Will keep u informed xx
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