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New Member

Date Joined Oct 2010
Total Posts : 1
   Posted 10/27/2010 9:55 PM (GMT -6)   
Briefly, I have had Fibromyalgia and osteoarthritis for 10 years but have been really sick for the last three.  My gp diagnosed Lupus and sent me to a rhematologist who says she is not sure and ordered more tests.  My mom has had Lupus for 30 years. My question is...can a lupus rash be around the eyes and in spots on my face? The doc seems to be hung up on it not being a "butterfly". I just want a diagnosis.  The gp gave me prednisone till I saw the other doc and I had not felt that well in years.  She took me off.

Forum Moderator

Date Joined May 2005
Total Posts : 7699
   Posted 10/27/2010 11:40 PM (GMT -6)   
If your rheumy is stuck on "the butterfly rash" as being the defining thing for a lupus diagnosis you need to find another rheumy. There are many symptoms of lupus and you need only have 4 of 11 of them to be diagnosed. Check the first topic "lupus resources" or to see what I'm talking about.

She may have taken you off the prednisone so that she can get a more clear picture of what your symptoms are pre-treatment. There are treatments less intrusive than pred that are usually used first.

Hope you feel better soon
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Sep 2010
Total Posts : 51
   Posted 10/29/2010 6:58 AM (GMT -6)   
I was tested for lupus for 10 yrs prior to getting a positive reading in my bloodwork. It finally showed it's self by my discoid breaking out on my face. I've been diagnosed for 4 yrs and never had the typical butterfly rash until just recently. I agree that if that's what your rhumy is dependant on to diagnose you, you really should look for another. I also hadn't been on steroids long term until this year. I am currently taking cellcept to try to get me off of the prednisone due to it's damaging effects on your body if you take it long term.
SLE, Discoid lupus, acute cutaneous, acute vasculitis and sjogrens

Prednisone, ultram, mobic, cellcept, plaquinel and ambien.
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