Diagnosing Lupus

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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 11/2/2010 6:46 AM (GMT -6)   
I recently went to yet another doctor trying to get answers.  She said that from the list of symptoms I had and the rash on my face she was positive it was lupus then she ran a bunch of blood work.  As she was giving me all the results she explained that my test for inflammation was normal and that another test she had done, I'm not sur if it was ana or what was 37.  So, she said I don't have lupus.  I am so confused and so sick of the run around I get from doctors.  I have heard some doctors diagnose you based on your symptoms, I wish I could find one like that.  I live in Michigan you know of any? 

Blue Wisteria
Regular Member


Date Joined Sep 2010
Total Posts : 39
   Posted 11/3/2010 5:33 PM (GMT -6)   
Sorry to here you are not getting answers or relief. Lupus is a complicated illnes, did you see a rhuemy? They are the ones that manage this condition, usually. I am not sure what was 37, but is was not your ana. I always request a copy of my test results.

Did the doctor give you any indication as to she was thinking?
Wishing a good day for all,



Lupus, Sjogren's, Athsma, Diabeties and RA

Plaquinal, Immuran, Rituxian, Pred, Cymbalta, Singular, Theophylline, Advair, Diovan, Mobic, Prandin, Lantus and Moraphine (as needed)

domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 11/4/2010 2:43 AM (GMT -6)   
she thinks it could be fibromyalgia, sjorns, and ranauds hopefully those are spelled correctly. I feel better today after 3 weeks of hell.

MV_VHYC24
Regular Member


Date Joined Oct 2010
Total Posts : 28
   Posted 11/4/2010 11:05 PM (GMT -6)   
 

I have had the same thing happen to me.  I have had the worst year of my entire life.  It started with a simple (or what I thought was simple) back injury in Dec.   After three steroid injections (Apr-May), I started to go downhill quick!  I developed De Quervain's tenosynovitis (inflammation of the tendons in my hands) in both my hands basically overnight!  Literally, I woke one morning with extreme pain in my right hand, by the end of the week it had spread to both hands. My rheumy tested me for everything under the under, with normal blood results and told me I needed PT and anti-inflammatories (which I was already on from the back injury), which didn't make sense as I didn't overwork my hands...and as sudden as the wrist problems came on, they went away! Then, the sore joints, muscle spasms became my everyday problem!  As they couldn't find anything wrong (bloodwork, xrays all normal), they called it Fibromyalgia (June).  I July, I finally changed doctors to one closer to home & would treat the pain of fibro.
 
For the last two months, I have had atypical pneumonia with pleuorisy (without elevate white blood count & non-responsive to antibiotics) lasting 4 weeks, followed by a sinus infection & continued lung inflammation & fever and extreme fatigue, hot/cold flashes for another 3 weeks (again no elevated white count & normal bloodwork). Today I visited the doctor again, for the 15th time in the last 9 weeks as my fever, hot & sweaty, mouth ulcers, fatigue, cough, sinus congestion, lung inflammation/wheezy is still present. My doctor is now questioning fibromyalgia, as I have more of the Lupus symtpoms (including the red face) and I am being sent to the 3rd rheumy for his option and additional testing.  Is it possible to have both the fibro & lupus without the bloodwork supporting?  I have tested positive for Sjogren's (1year) and I have Hashimotos (7 years) and a positive speckled ANA (don't know the titration level)
 
How many years did most people wait for a positive Lupus test?  My doctor is sure I have Lupus (her sister was diagnosed years after symptoms began) and says that one day all the markers will be positive.
 
 
Dx:Fibromyalgia, Hashimoto's, Sjogren syndrome, +ANA (Speckled), Spondylolisthesis, Scoliosis, Migraines, Anxiety/Depression, Ovarian Cysts, Spinal stenosis, L4/5 herniated discs, Sexual Dysfunction
Meds:Cymbalta, Zanaflex, Synthyriod, MS Contin, Savella, Advair

**Children seldom misquote you. They more often repeat word for word what you shouldn't have **
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