Posted 11/7/2010 8:11 AM (GMT -7)
Thank-you Kimberlyrenee for sharing your experience with me:) I hope that I have a similar response to the injections as you have (minus the pain of course). You raised a good point about expense though. I need to phone my dermatologist on Mon morning to find out if it's going to cost me anything. I live in Canada and it's a little different here. Most things are covered in the medical to some extent, but who knows, maybe this will cost me..hmmm...I will ask.
I did see my rheumatologist on Fri as well, and mentioned to him about the injections and my dermatologists opinion as to having two different types of hairloss. The end result is that he's upped my dose of Imuran to 150mg p/day and he agrees that that should speed up the growth of the hair on the top of my head. He doesn't however agree about the steriod injections..he thinks that my lupus is well under control with the meds, but that the skin part of the disease is separating from the rest of the symptoms..he believes that it will require a new daily medicine to get improve the discoid rash on my hands and my hair loss and wants to hear from me in 2 months. Also I might be referred to a dermatologist-rheumatologist (didn't know there were such specialists out there) who can deal with both the lupus and skin elements at the same time. I just want it to work, but also am in a frustrated state of having so many perscription drugs in my system. I don't like it at all..makes me nervous all these drugs..I often think, what could this doing to me? I'm sure I must not be the only one. Sometimes I feel like I'm playing with fire..do I take it, or don't I.
All I know right now (health wise) is that the alopecia on the back of my head is getting worse..pretty soon it'll be either sot works, or possible within a couple months I'm looking at buying a wig or something. I have lots of nice hats..well a few and am looking at buying a hat rack to nicely display o. I've gotta work with what I got. I know that hair loss is not as critical a problem, but for some reason I find that it's harder emotionally for me than some more serious symptoms. Am I that vain? I think sometimes I just get tired is all...I tough and tough and tough it out, and sometimes (like now) it gets the best of me..I try and have fun with the new things to try, but I get frustrated too. Sometimes I just want to wear my hair half up or in a pony tail and not worry about a big bald patch on the back of my head showing or the hairs growing on the top of my head sticking up three inches..ya know? I'm sure that others on this site can empathize..
Anyways, thanks for listening (or rather reading everyone). I'm going to go for a lovely cool, brisk morning walk and enjoy the day. It's very early. I wish you all well.
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.