Wow, this is exactly the syptoms my husband has. He has been diagnosed with an "undiagnosed autoimmune disease". His platelets stay around, 20,000 his ANC about 0.5. He has constant fatigue, goes to bed about 8pm every night. He had a serious mouth ulcer a couple of weeks ago (Doc said it was a Canker sore). He has joint pains and muscle aches. Bone marrow normal, ANA negative, there was one report of an inverted CD4/CD8 ratio, HIV negative. Everything negative. When his blood is lower than average, he gets red watery eyes, weakness and almost a yellowish tint. He also smells very sweet sometimes? He had a period of really high thirst I thought he was a diabetic but blood sugar test was normal.
He was bitten by a black widow sipider 3 years ago, a year before symptoms started. He was in the hospital for 11 days total (ended up with a staph infection) he was oon vancomycin for a while and had a red man reaction but they kept it going. His hematologist thinks the venom or drugs may have triggered the autoimmune response?
Any ideas? We have never been to a rheumatologist. Oh also, our sone was diagnosed with Crohns disease 2 years ago at age 7.