I’ve been in a pretty bad flare the last 5 weeks. It all started with Migraines and a persistent UTI that would not go away. I suffer from migraines but after a few days and my regular meds that usually help didn’t I went to my family doc. She said I was in a flare my face was so swollen that for whatever reason it was giving me migraines so she gave me antibiotics and prednisone pack. The prednisone made my migraine go away and most of the swelling but my bones and joints still hurt. So then I had a flare like no other. I’ve only had 3 good days in the last 3 weeks. My joints hurt both knees, ankles elbows and shoulders and now my hips. No real swelling that I can see other then my face. I have bone pain not just around the joints but everywhere it radiates and I feel a bit shaky inside. I have the butterfly rash almost always but mostly it’s just a rosy complexion over my cheeks and nose. Doesn’t hurt or look like a rash… The sun doesn’t affect it but it does get redder when I flare in the morning and evenings. I’ve developed these bumps all over my face feels like a baby’s rash when u touch a hive before it swells up a million ill bumps. There not red or raised much they don’t itch or anything there just there making my skin look and feel unhealthy. Does anyone know if that sounds right or is it just my skin changing.
Today I woke up at 2 am feeling uncomfortable in my body , got hot then cold then I got up to get a drink and oooooh the pain in my bones just kicked in to hi gear I was crying and feeling nauseous because the pain was so strong . My skin hurts to touch even to have my clothes on it hurts. I’m going to see if I can get a doc apt because my flare isn’t getting any better. I’ve been down a lot just can’t take pain like I used to before I had lupus. I think it’s the constant pain that’s wearing me down. I sleep a lot when I can because it doesn’t hurt when I can sleep. I’m so tired of taking strong pain meds they make me feel weird sometimes but sometimes I can’t function without them. I’ve just met with a local lupus support group. I got a lot of ideas to help with the pain and fatigue meds to try if my doc will give them to me and just to have people to talk to helps. I pray something helps soon…
So there’s my rant I’m sure it sounds scatter brained and not well written but that’s how my brain works or doesn’t these days t I just had to get it out. I’m going to go try a hot shower see if that helps. Thanks for listening and sorry for scatter brain part.
Ive had Lupus for almost a year... Thease are what bother me most.. Joint pain in knees and ankles , Swelling hands and knees, other unexplained joint pain, muscle and bone pain, pins and needles in my legs, brain fog, cant focus always distracted, insomina,and fatigue...
Plaqunil, baby asprin, Motrin 800, Trazadone, Loratab for pain, Fish oil, and Vitamin D