I have been on Plaquenil coming up on 2 years. Before going on it, when lots of symptoms were flaring, hair loss was one of them. Right after starting the Plaq, that settled down and wasn't a problem for quite awhile. But the color and texture of my hair did change - kind of bleached out and finer. Over the last several months the hair loss has been significant and consistant again.
It may have started in the early spring when I reduced my plaquenil to 200 mg daily on the advice of a new rheumy. After about a month or so it was clear that symptoms were returning and my current rheumy told me I needed to stay on twice a day dose, which I've done since May. At any rate - the hair loss hasn't stopped. I don't really have bald spots - but fear they are in my future if this overall thinning keeps up. Gobs come out in the shower, and my part gets wider all the time. The hair is just bleached, dry, thin and lifeless.....and disappearing.
Is this something anyone has experience with? I would suspect thyroid issues, since I'm cold all the time, dry skin, etc. - but that's been checked and while the TSH is increasing, it's still within normal limits.
Hate to whine about a vanity issue....but any suggestions out there?