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New Member

Date Joined Nov 2010
Total Posts : 4
   Posted 11/18/2010 5:51 PM (GMT -7)   
Ever since I was diagnosed with SLE, I have had a problem with the whites of my eyes turning red - all the time. They do feel dry but not terrible - they just look terrible. I have had to give up wearing contact lenses and I now use daily eye drops but nothing seems to help. Does anyone have this problem and/or know how to control it?

Blue Wisteria
Regular Member

Date Joined Sep 2010
Total Posts : 39
   Posted 11/18/2010 6:50 PM (GMT -7)   
Sorry to hear this, I personally have not had an issue with my eyes. I know that I was told to only use drops that are like our own tears, not to use anything else. I know this probably did not help. Hope it clears up for you.
Wishing a good day for all,

Lupus, Sjogren's, Athsma, Diabeties and RA

Plaquinal, Immuran, Rituxian, Pred, Cymbalta, Singular, Theophylline, Advair, Diovan, Mobic, Prandin, Lantus and Moraphine (as needed)

New Member

Date Joined Nov 2010
Total Posts : 18
   Posted 11/18/2010 7:16 PM (GMT -7)   
hey there,
are your eyes red all the time? do they itch or burn or feel gritty? I would use a preservative free tear like genteal or theratears and there are many many more sometimes you have to find the right one for you! do NOT use any drop that "gets the red out" that just constricts the blood vessels and the second you stop using them it returns.

If you have any other problems get your eyes checked by an ophthamologist, if you have dryness issues they can help with drops, punctal occlusion, perscription drops.....there are many options.

I hope this helps!
DX 11/2010 Lupus and Sjogren's

Forum Moderator

Date Joined May 2005
Total Posts : 7514
   Posted 11/18/2010 8:29 PM (GMT -7)   
The right drops are "lubricating" eye drops or gels. GenTeal or Tears Naturale come to mind.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

New Member

Date Joined Nov 2010
Total Posts : 11
   Posted 11/19/2010 12:19 AM (GMT -7)   
Have exactly the same problem as you do, red sore, gritty, dry eyes. I find the best drops to use are the lubricating ones or  gels and use them as often as possible. Mine seem to last for a few days then settle down for a while but don't get lazy when you're eyes seem ok, it's a constant battle if you stop using the drops when the red is gone it'll be back in no time. Keep well

Regular Member

Date Joined Mar 2010
Total Posts : 90
   Posted 12/6/2010 9:24 AM (GMT -7)   
I have the exact same problem, and at first I thought it was because I started fallin asleep with my contacts in sometimes or a new mascara...but I think it may also be related to some of the medications - I'm just not sure which one - Plaquenil or the Medrol. It doesn't happen every day...but the genteal have really helped after I take my contacts out and rewetting drops when I have them in. I've heard of folks on restasis and using the previously mentioned eyedrops that keep them on the fridge door handle because it feels better when its cold, but I'd have to read the box to see if its safe or ask the doctor before doing that. Hope they're feeling ok!

Regular Member

Date Joined Sep 2010
Total Posts : 51
   Posted 12/6/2010 10:45 AM (GMT -7)   
I would ask my doctor to check you for sjogrens. I have it along with the sle, the run together alot. It causes me that problem with my eyes. That would be my guess. Hope you find some releif soon.
SLE, Discoid lupus, acute cutaneous, acute vasculitis and sjogrens

Prednisone, ultram, mobic, cellcept, plaquinel and ambien.
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