Obviously something is wrong but sed rate does not give a specific diagnosis. It is an indication that some type of inflammatory process is going on in your son's body but sed rate does not give a specific diagnosis. Same for anemia...there are many different diseases and conditions that can cause that.
Where there any other abnormal labs?
What kind of a specialist are you seeing? I would push for the earliest possible appointment.
Hopefully, the new doctor can get a handle on what is going on and start treating your son. As the father of 4 and grandfather of 8 I know how stressful it is when your child is sick.