Welcome to the forum! You have found a great place to ask all the questions you want :)! I am sorry you are feeling so bad! Did i miss something or are you not taking any "lupus" medication. Such as Cellcept, Imuran, plaquenil, or methotrexate to name a few? Is it because of the epilepsy? If you can take one of those, you probably should. They lower your immune system so that it stops fighting the good organs in your body!! Is the shot you go for once a month prednisone or a diffent medicine??
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran
If God brings you to it, he will get you through it!!