I agree with Mommyof121, it sounds like all your medications are for symptoms not the actual disease, that mixed with heavy medications may be wearing on your body. Do you eat well? That can make a tremendous difference. When I was first diagnosed I was living my life as if nothing had changed, until I got so bad I had to cut out some activities I was involved in, I had to start sleeping:), and eating better. I always feel better when I know I did good to myself.
I too myself feel that at times I am just taking more medicine to treat the side effects of the other medicines I am taking. I read somewhere that is not good, then I counted how many drugs I was on and decided to rethink some things. Luckily, my sister is a pharmacist, so I did consult with her. I talked to my doctor and explained that I really don't want to add any more drugs than I have to, and perhaps I am a bit over-medicated. He wasn't crazy about the idea, but at least he listened, and I have slowly decreased some medicines (over-the-counter and prescribed).
If you really feel that bad and your qulaity of life is that bad, I think you really need to communicate this with your rheumy. How long have you had this diagnosis? A good rheumy (who is really hard to find by the way) should be helping improve the qulaity of life and you should feel comfortable enough to talk openly with that doctor. I am in between rheumys right now(insurance reasons) but the first few I saw...I hated! All they did was drug me up on pain meds and basically made me deal. One even went on vacation before checking my labwork and I had already been admitted by my childhood physician( I didn't know where to go that is why I went there) I knew I was really sick and as it turns out my kidneys were practically in failure. The one I just left, for insurance reasons, was great and I will miss him. My nephrologist is truly the one I see the most frequestly right now...and I LOVE him...I hope I have good luck with the new one....I also have restless leg but I do not treat it. Traveling is really bad but I seem to sleep through the night so I try not to worry. I sometimes take a xanax when I can't stop fidgeting...
I have taken over the counter heartburn medicine to settle my stomach and I wasn't even having heartburn, I was having diarrhea from a medicine I was on. So I went off that, and talked to my doctor about chnaging my dose. I was on an additional blood pressure med until I was actually running so low I was practically dead:) So I am finally only on one now. That's just in the last 6 months:)
Cellcept, Metroprol, prednisone, Lasix, citalopram, levothroid sp?, calcium, iron, multi-vitamin, xanax(when needed)