Posted 12/1/2010 5:27 PM (GMT -6)
So I saw a GI specialist today for the first time. I described my symptoms and at first he said that it sounded like IBS. Then when I mentioned the mouth ulcers I was getting before the pregnancy he realized my rheumatologist must have wanted to order the scope testing to test for Crohn's. So, I get to go friday for both the Endoscopy & Colonoscopy...get to start my gallon drink & liquid diet tomorrow...joy...anyway, I wanted to tell you all my symptoms and see what you think it may sound like:
-Mouth Ulcers(in multiples, 3-5 at a time that can occur anywhere in the mouth and throat, it would seem like 1 group would be going away and then Id get a new group starting in my mouth in a different spot(s))
-Nausea(Currently have GERD & I cant drink milk without wanting to get sick)
-Abdominal Pain/Discomfort(cramping & sharp stabbing like pains sometimes at night that aren't relieved by eating etc. & accompanied with nausea)
-Bloating(pain occurs with this symptom; mostly sharp pains and again more nausea)
-Urgency(sometimes when the urge to go to the bathroom comes on its not long after that that I go and then sometimes ill have the abdominal pain/bloating for hours before I go..or ill have it and then it goes away and ill go to the bathroom later.)
-Change in Stools(most of the time I have problems with constipation & change in diet does not help this. Then at times the stools are looser but not necessarily diarrhea, although ive had 1 or 2 bouts of it since the symptoms started.)
-Bleeding(Ive not seen any mucus or blood in any stools but have seen it on the paper after a bowel movement)
-Relief/Non-Relief after Defecation(sometimes if I have the urgency and I use the bathroom I feel relieved as far as the stomach cramping, etc but the nausea and the urgency stay for a little while & eventually calm down)
My other AI symptoms that could be related to Crohns that I know of from reading are as follows(this doesn't include all of my AI symptoms however which is why they suspect lupus im guessing):
-Lower backache(occurs with the stomach cramping at times)
-Arthritis in multiple joints
-trouble keeping a steady weight when flaring(I lost a good 8/9lbs before i started any meds for my AI disease back in 08 & at that time being 5'2 I only weighed 110 so I dropped to 101, also cannot gain weight..even during both pregnancies i only gained 13lbs the first time even being on bedrest for 6 weeks & having a preemie at 34 weeks & 18lbs the 2nd time with a fullterm baby at 39 weeks)
-general malaise, aching & clamminess w/abdominal pain etc.
Anyone have these symptoms and have Crohn's?
The GI also said that I have staining on the insides of my teeth which is usually caused by frequent vomiting, well I dont throw up at all really so Im not sure why I would have that unless it could be from the GERD??...not sure what to think of that symptom.
Any info or stories are welcome! Thanks. Hope you are all well. -Lupie Britt