Just to share my story.
My wife was diagnosed with APS in Oct when she got stroke and pulmonary embolism. Doctor(rheumatologist) gave her very high dose of steroid like 1g/day to keep my wife alive as her condition is critical. After that, they gave her IVIG for 5 days in total 2g/kg. After discharged from hospital, my wife is taking 40mg predisolone, 200mg plaquenil, 1000mg cellcept, 3mg warfarin, 75mg plavix daily. After 5 weeks, now my wife is taking 7.5mg predisolone, 400mg plaquenil, 2000mg cellcept, 4.5mg warfarin and 75mg plavix daily. Cellcept is for steroid sparing. At the end, we want to get rid of predisolone and stay with cellcept alone though cellcept is very expensive and some claim might cause skin cancer but doctor claim it has no side effect. But I don't understand why doctor prescribe plaquenil, according to him, it will help my wife to get full remission. I hope he is right. My wife condition is very good now with no pains or serious fatigue. She can walk, talk, cook but her hand still feel numb due to the stroke. I pray she will not get another flare up. We bet on 1g/day steroid and very expensive IVIG, they saved her. We bet on cellcept now. Hopefully in few years time doctor will find a way to completely cure my wife.
All these happens in 2 months time and I have spent more than my annual income in 2 months. I am thinking to buy insurance for myself as my wife quit her job now and I am the only bread maker now.