Having a BAD flare, would I be a drama queen for going to the ER?

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daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 12/5/2010 8:55 PM (GMT -6)   
I started having a flare yesterday and it was tolerable, but today I decided to try and use my WII fit and may have over pushed my self and now my flare is wayyy worse...all my joints hurt and even when I try to sleep anything that touches me hurts soo bad. My muscle weakness is so bad too that I feel like I am going to fall when I try to get up and move :'(. I am in between rhoumatologists right now and I have a appt with my new one in a few days, but he is the best in town and works at a university , I had to wait months just to get the appt I have and I highly dough he will see me before then. I want to go to the er so bad just so that they can help me get to Wednesday but I do not want to seem like a drama queen.
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney
Neurontin 600mg x2 3 times a day, Plaqunil 200mg x2 a day B-12, Omega 3 fish oil.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/5/2010 9:28 PM (GMT -6)   
Are you able to eat and/or drink? Gatorade to avoid dehydration? Anyone at home with you?

If you feel like the ER can help you, please go! Or if you have a regular dr or a quick-stop clinic nearby go there.

If you feel dangerously bad, don't worry about what others might think -- TAKE CARE OF YOURSELF. If that means the ER, so be it.

Please be safe,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 12/6/2010 10:19 AM (GMT -6)   
Hi Dani - I have faced this question a few times - and even before I was officially diagnosed with lupus and "just had fibro" (say that because half the time the fibro causes worse pain, but a lot of doctors don't see it that way).  When the pain gets bad and all I can do is sit and cry - its time to go.  My rheumatologist and those on call have told me that.  They say to take my meds and if I'm still in pain to go to the ER.  Unfortunately, I usually get relief for the time while I'm there, but after the pain meds wear off, unless they give me something a little stroner than what I'm taking to take home with me until the flare ends or I can see my rheumy, I feel the same as before I went in a few hours after I get home.  However - the good news is I have noticed a big difference in the ER taking my Lupus pain more serious than my fibro pain so I always blame it on the lupus....they will want to take blood to make sure there aren't any problems going on but should try to relieve your pain in the meantime..
 
So - in any case, if your appointment is Wednesday - and you can't take the pain I would go...I always feel guilty and its natural but I know its not a reasonable feeling.  You take care of you - but like Lynwood said - please stay hydrated and also if you do decide to go its best if someone drives you - A) because if they give you medication they won't let you drive home and b) I've overheard doctors literally saying about other patients "oh she drove herself so it can't be that bad"
 
If its causing you that much distress, I would do what you feel is best and go if you need it - having fibro as well...the longer i try to cope with the pain, the more stressed my body becomes and the worse I get....then it turns into me going to the ER at 2 am because I waited so long...I'm flaring myself-unlike the Wii fit, mine came from being in a wedding...standing in heals for hours then dancing a bit which I knew would cause pain but couldn't bear to not dance with my best friend and my mom - and I just feel for you...I've debated going myself...Lynnwood is right - take care of yourself because if not it could get worse...and that by NO means makes you a drama queen. Lupus and Fibro pain is serious and chronic...I'm 26 and have had 5 major and 4 minor surgeries and would choose the few days/weeks of recovery of that serious pain over the pain of Fibro/Lupus anyday - sometimes its that bad anyway!  I will be thinking of you - I truly hope you start to feel better and receive some relief!

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 12/6/2010 4:02 PM (GMT -6)   
I eneded up going to the ER, I could not even walk up my stairs. Its so hard because they gave me 20 mg of predisone and 7.5 loratab and 50mg of tramadol. My Roummy called me today saying they saw that I had called them and asked me if everything was ok or if I needed anything and I told them what happened and they told me not to take the steroids because they will do a lot of blood work and they dont want the steroids to mess up the blood work, but the steroids help me more then the pain medication...I always see it, that if I can drive my self to the ER then I shouldnt go.
I noticed that you said that your fibro. pain is worse then the lupus most of the time and I can totally relate...I found that when my fibro acts up taking omega 3 helps SOOO much...also yoga..I just started it and I am already feeling my fatigue and deep muscle pain getting better.

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 12/6/2010 5:23 PM (GMT -6)   
If your rhuemy doesnt want you to take the steriods. Please don't...the steriods will reduce inflammation and will cause your tests not to show what they might show without the prednisone. If you can, make it a few more days using the tramadol and hydrocodones...So sorry you are hurting so bad and please let us know what your rheumy says in a few days

((((Hugs)))
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 12/6/2010 8:43 PM (GMT -6)   
im deff. not gona take it...I already gained a lot of weight from being on them for a few months because it was the only thing that helped my fibro pain, my moon face is just starting to go away!
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney
Neurontin 600mg x2 3 times a day, Plaqunil 200mg x2 a day B-12, Omega 3 fish oil.
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