Lupus after Gastric Bypass Surgery

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jenzfreedom
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/9/2010 10:52 AM (GMT -6)   
Hello everyone,
 
This is my first time posting on the Lupus forum, I've been mostly looking at the fibromyalgia forum.  The two seem very similar so I'm just doing some research before I go to the doctor in January.  I have pain, but it seems more in the muscle/nerves than in my joints, other than my knees, ankles and elbows.  I also have overall soreness, restless leg syndrome and alot of sleeping problems (although I got the best nights in forever last night...yippee!).  But I have for years shown a red rash across my cheeks and nose, and seems like thats more a symptom of lupus, its warm to the touch alot too and there are times that I have a slight fever (but for someone else it might not be, my normal body temp is lower than normal, 97.5) One question I had after reading quite a bit on lupus is that it comes from a non functioning immune system....right?  I had gastric bypass surgery 7 years ago, and this surgery zaps alot of the vitamins and protein out of your body!  Has anyone on here developed lupus after having GBS, and is there any corelation between the two?  Could a weakened immune system due to GBS cause Lupus?  Just a thought, thanks for you input!  Jennifer

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 12/9/2010 11:01 AM (GMT -6)   
I am (as we speak) awaiting blood work results for possible lupus/connective tissue disorder. I have already received the diagnosis of Fibromyalgia but rheumy thinks something else is going on. I suffer from burning muscle ache, extreme fatigue, insomnia, and anemia. There are a few other things as well.
I also go for a biopsy on a large mass growing on my left thyroid. It is so large it is squeezing my tracae against the other side of my throat causing achy throat, jaw pain, and constant ear ache.
Any way the reason why I am responding to your post is because I too had the gastric bypass 8 years ago. And yes a lot of my vital nutrients are low or out of whack. My b-12 levels are very low, my iron is extremely low, my vit. d was very low and several other things as well.

So my question always is......did all this cause the "lupus" symptoms, is it just fibro, is it possibly lupus and that caused all the low vitals????

I too am confussed and wonder every day which caused which or did they all come hand in hand and the bypass just started it all??
Denita
***************************************

Fibro, meniscus tears in both knees, arthritis in both knees, B-12 defficiency, pernicious anemia, vit. D defficiency, mild alergies, and insomnia.
***************************************

Way down south where the bananas grow a grasshopper stepped on an elephants toe,
The elephant said with tears in his eyes, " pick on someone your own size".

jenzfreedom
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/9/2010 11:42 AM (GMT -6)   
Wow Denita, it's nice to hear from someone who is wondering the same thing, and is experiencing the same issues.  I keep asking myself did the choice to try and get healthier by losing the weight put me in jeopardy for so many other problems, it sucks!  Sounds like you're having a difficult time.  I've read that people with lupus often end up with fibro too, so thats why I'm researching both.  Good luck with the biopsy and keep us posted.  Thanks for responding too my post!
Jennifer

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 12/9/2010 1:05 PM (GMT -6)   
you know whats funny? before I lost all the weight I was happy and energetic. But I thought that life would be even better if I could sit comfortably in a movie theater seat, in a booth versus a table at a restaurant, use the seat belt w/o an extender, have better sex with hubby....I'm sure you get the picture.

Now I have lost all the weight and for what. I can sit in the movie seat but not comfortably. Before the movie is even half way over I am uncomfortable and aggrevated and rarely enjoy the movie. Sex might be better but now its a whole lot less often because I just hurt to much to even think about it.

I can walk around the block but I still can't walk up a flight of stairs. not because of the weight but because my energy level is extremely low and my pain level is extremely high.

I wouldn't undo what I have done because I know I am much better off without all that extra poundage. I know that if I was 125 pounds heavier the aches and pains would be soooo much worse.

It just doesnt seem fair. And the fact that it takes so long to figure out whats going on and get the proper treatment doesnt help at all.

Most of the time I do feel pretty good but since early summer I have been in a terrible "flare". My b-12 (211) and iron (6.68) and vit. d (11) are all considered alert low. Did this cause the flare?? Now I find out I have this mass that has probably been there for a few years but just now causing a lot of trouble and pain - is that causing the flare?? OR, is the fibro "flare" causing all the numbers to go out of whack and the pain to increase. I think if we could find out which came first we might be able to stave off the flares?? wouldn't that be a novel idea??

p.s. just a little bit about myself. I am 49, the mother of 5, the grandmother of 11 and the wife of a very understanding hubby. We live with my daughter and her 3 very young (6,2,6mos.) boys and I really need all the energy I can get.
I had my surgery 8 years ago and went from 360 to 245 and stayed that way for the past 6 or so years. I did actually lose a bit more, gained some and then lost some more again. So I generally dont count that. I really wanted to lose more but about the time the surgery stopped working by itself I was dealing with this new "fibro" disease and excersize was out of the question.
we live in Delaware so we are now in the early throws of winter which all in itself brings on new aches and pains.

tell me a little bit about yourself. I'd like to get to know someone that has the "uniqueness" about them that makes us a bit different than others that have lupus/fibro...etc
Denita
***************************************

Fibro, meniscus tears in both knees, arthritis in both knees, B-12 defficiency, pernicious anemia, vit. D defficiency, mild alergies, and insomnia.
***************************************

Way down south where the bananas grow a grasshopper stepped on an elephants toe,
The elephant said with tears in his eyes, " pick on someone your own size".

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7698
   Posted 12/9/2010 2:02 PM (GMT -6)   
Lupus isn't a weak or no immune system -- it is the opposite - an OVERACTIVE immune system that randomly decides a normal part of your body is foreign and attacks it just as a normal system attacks a germ.

One of our members just had the gastric bypass surgery (or another of the methods, I think there are 3 now) after years with lupus. Her lupus, neuro and other doctors encouraged her to have the surgery -- if there was any chance GBS would cause or contribute to Lupus there is no way that ever would have happened, I'm sure!!!

One big difference between lupus and fibro (sorry neither has a definitive diagnosis) is that lupus patients generally feel BETTER or prednisone and fibro patients generally feel WORSE on prednisone.

Hope you all feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 12/9/2010 2:48 PM (GMT -6)   
I am a bit confused and I hate to sound really stupid but if it is as easy as to what meds each condition responds to, why don't they use them first as a trial and error instead of putting people through the "rule out process" first.

I have been having these major type flares for several years and not once did anyone offer to put me on prednisone. could it have been that easy?
Denita
***************************************

Fibro, meniscus tears in both knees, arthritis in both knees, B-12 defficiency, pernicious anemia, vit. D defficiency, mild alergies, and insomnia.
***************************************

Way down south where the bananas grow a grasshopper stepped on an elephants toe,
The elephant said with tears in his eyes, " pick on someone your own size".

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/9/2010 3:10 PM (GMT -6)   
Dear Denita and Jennifer,

Denita, to answer your question, sometimes it can be that easy (just taking prednisone), but other times life throws you a few curveballs.

I've been diagnosed with a whole bunch of autoimmune diseases and related disorders in the past few years, including lupus and fibromyalgia. But that wasn't all there was to my story, unfortunately.

It turns out that I have Lyme disease, plus several of the "coinfections". I had no idea how big a problem Lyme is becoming in this country until I was diagnosed with it.

Lyme can both mimic and trigger lupus and fibromyalgia. People who have either or both illnesses should be tested for Lyme disease (not by the ELISA blood test, but by Western Blot), just to rule it out.

I certainly hope that neither of you have Lyme and that the doctors can get to the bottom of your pain and other symptoms quickly......it's terrible being in diagnostic limbo!

((((((((hugs)))))))) to both of you!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

jenzfreedom
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/9/2010 3:14 PM (GMT -6)   
Thanks for the info Lynnwood, that gives me a little better feeling.  But, Denita like you said you would think losing the weight would improve our health.  The other thing is that if it is so difficult sometimes to get even the specialist like a rheumatoligist to diagnose fibro or lupus how can a doctor that specializes in GBS know enough about it to know how the two situations will interact, just a thought! 
 
Denita, I had my surgery actually almost 8 years ago as well (time flies).  I had high blood pressure and alot of pre-morbilities, my dad had diabetes, cancer, hypertension, strokes, etc and my mom passed away from ALS (Lou Gehrig's disease).  I weighed 275 lbs when I had the surgery and have been able to stay around 150-155.  I too wouldn't change anything but it seems like I got to a healthy weight and than feel apart...lol!!!  I feel the same way, couldn't do so many things that I wanted to because of my weight and now that it's relatively normal I can't do them anyway cause everything hurts.  Denita, we sound so much alike, everything you talked about sounded like it was coming out of my mouth...!!  I am soon to be 47 (New Year's Eve), and live in Virginia, I have 4 grown children, 2 boys, 2 girls (26, 23, 21 and 19) and 4 grandsons (4, 3, 2, and 1), yeah crazy when they all get together...lol!!  I have a significant other who is great to me, even though we've only been together 14 months he's still wanting to stand by me through this.  Both my parents have passed away so that makes things like this kinda hard, my mom was always my go to person, and as close as I am to my girls its hard for me to talk to them about the pain because it upsets them!
 
I hope everything goes well with the biopsy, keep me posted, nice talking to you! 
Jennifer

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 12/9/2010 3:51 PM (GMT -6)   
Jennifer, you are not going to believe this, I almost don't.

OH MY GOD!!!

My mother too passed away from ALS. I am so sorry for you. It is a terrible disease and watching my mother die in front of my eyes is the worst thing I have ever had to live through.
I cannot believe this..I am in tears.

She was only 60 when she passed. She left behind 5 children, 8 grandchildren, and 1 great grandchild. He came 2 months early and spent 16 days in nicu but came home in time to see his greatmommom before she passed. Although it wasnt a good thing that he came early we think it was a gift to my mom from God to see her first greatgranchild before she passed. He was due December 17th, came October 27th and my mom passed January 9th.

My father is gone too but I never really knew him. He left when I was young and up until he passed I had only seen him once.

I really am in shock right now.
Denita
***************************************

Fibro, meniscus tears in both knees, arthritis in both knees, B-12 defficiency, pernicious anemia, vit. D defficiency, mild alergies, and insomnia.
***************************************

Way down south where the bananas grow a grasshopper stepped on an elephants toe,
The elephant said with tears in his eyes, " pick on someone your own size".

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 12/9/2010 6:01 PM (GMT -6)   
What you are describing sounds like lupus. I was told by my first Rhummy that surgery seems to make lupus flare up from the stress it puts on the body. Lupus can be very hard to detect but the one thing that doctors seem to check is the ANA, and CBC. Expect on your first appt for them to take A LOT of blood. I have never gone to the Rhummy and had them take less then 8 tubes.
Did you have a blood transfusion? I have heard of people getting lupus from blood transfusions. That is why people with lupus can not donate blood.
Lupus is a auto immune disease where your body attacks its self thinking it is foregin.

Good luck with your first appt!
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney
Neurontin 600mg x2 3 times a day, Plaqunil 200mg x2 a day B-12, Omega 3 fish oil.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7698
   Posted 12/9/2010 9:50 PM (GMT -6)   
That is incorrect. People with lupus CAN donate blood -- and I have! It's certainly not recommended if you have any flaring or activity going on, but can be done if your lupus is "resting" or managed.

Lupus is NOT transferred via blood. It's an auto-immune disease, like MS only the opposite, but is not carried in the blood at all.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 12/10/2010 5:49 AM (GMT -6)   
I too have given blood when my disease activity is fairly low! A lot of times you will not physically be able such as having low iron or have been fighting a cold/virus or even certain medicines but we lupies most certainly can give blood and it has NOT been transferred from blood transfusions.
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

jenzfreedom
New Member


Date Joined Dec 2010
Total Posts : 15
   Posted 12/10/2010 7:50 AM (GMT -6)   
Thanks to everyone for their input and valuable information, you all are great!  Denita, I'm in tears as well.  ALS is one of those diseases like fibro and lupus in that alot of people don't know much about it except Lou Gehrig had it and died from it.  It is an awful awful disease and until you have the unfortunate experience of watching someone you love go through it you just don't know.  My mom lived a long life, she didn't get ALS until she was 76 and lived to be 80.  She is the reason that I keep telling myself that I have to fight with what I am experiencing, if she could live and fight through what she did which was much worse than this, than I can manage.  It was so hard to watch her progressively get worse and worse and to know that even though she could hardly speak or walk she knew everything that was going on around her.  It's weird how you talk about her holding on the see her first great grandchild.  My Mom unfortunately couldn't, she passed away a fews months before that happened but the final week of her life when hospice was coming in everyone was amazed that she held on as long as she did, but she wouldn't leave until she got to speak to each one of her grandchildren, my sisters and I were all there that last week, another weird coincidence, she had 5 children, 11 grandchildren, and 3 step grandchildren.  Since she passed away we have added another 7 great grandchildren, wish she was here to see them, but I tell myself she is, she's just seeing them from heaven!  It's so amazing how determined they can be, my Dad's b-day is March 17th, st pattys day and that was her final week, we were sure she was gonna go on his b-day to be with him, but she waited until the 18th, we don't think she wanted us to mourn her death on his b-day!  She was an amazing woman and I miss her everyday!  Thanks for listening, it's nice talking to you!
Jennifer

PJ555
Regular Member


Date Joined Sep 2011
Total Posts : 79
   Posted 10/3/2011 10:34 PM (GMT -6)   
I had Gastric bypass 8 years ago and I see a rheumatologist Friday to confirm what I am pretty sure is Lupus. I am sure that Gastric bypass has nothing to do with the diagnosis at all. It is an auto immune disease and gastric bypass does not cause that type of disease. It does a lot of things to our bodies and that type of disease is not one of them. It weakens a lot of things for us so it would definitely make us more suseptible to flares in my opinion because I think that we are weaker because of the fact that we don't absorb things that well. Unless you are one of those people that didn't follow the diet well and didn't lose your weight then you are doing just fine and you are not suffering nutritionally. I did lose 100% of my weight and recently I had a surgery that had major complications and suffered severe malnutrition so I am underweight. I think that I have been developing Lupus for awhile now but due to this traumatic event it has cause a super duper flare. Since June I have lose 1/2 my hair, with the rate of loss in may hair right now within 2 months I will be bald. My right hand is so stiff I can barely move it and now it is starting in my left hand. I have other joints that are stiff. I have all kinds of symptoms that I can mark on the checklist for Lupus. My concern is this, WHAT IN THE HEC AM I GOING TO BE ABLE TO TAKE medication wise having had gastric bypass. I cannot take steroids they make me sick as a dog. We aren't supposed to take NSAIDS and from all the reading I have done those are the two biggies that they give you. I am not sure about the antimalarials but how do they react with gastric bypass patients? I have to get some relief from this fatigue and hair loss and all these symptoms I am about looney toons at this point so now I don't know what they are going to be able to treat me with and I don't want to be bald!!!!!!!!!!!!

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 10/4/2011 9:05 AM (GMT -6)   
I have recently been diagnosed with RA and for the past 5 years have been treated for fibro and malabsorption issues. I take tramadol, mobic, flexeril, synthroid, plaquenil and prednisone, and several vitamins, iron, and B-12 shots. I have never been told that I cannot take a medication because of the bypass. What is the reason?
I am glad that you lost your weight and kept it off. I am sorry that you had a bad experince with surgery and now suffer the opposite problem with your weight. I went thru the whole malabsorption gambit, it took almost 4 years to diagnose and treat every one. And just when I thought that we finally had it figured out, I was given the diagnosis of RA. Now I am finding it hard to tell which is the reason for todays aches and pains.

I am going to ask my doctor again about the meds I am on and the effect they may have on me since I have had the gastric surgery. Truthfully though, I havent had any stomach issues to suggest a problem with any of the meds.??

I really wish that I had worked harder at losing the weight. I lost about 2/3 of it but still always thought that I was fat. I saw no difference in the mirror. Or so I thought. Now........I am just a mess. The prednisone makes me feel like I am starving, all I want to do is eat, eat, eat. If I don't take the prednisone I cannot function.


Sorry I cannot give you any advise on the meds issue. Like I said, I take them all and havent had any problems with the tummy because of them.

take care,
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7698
   Posted 10/4/2011 9:33 AM (GMT -6)   
Some people find that since the bypass surgery severely restricts stomach size, that some pills do not digest as they would in a normal sized stomach. Thus dosage, pill size, how many are taken at once, etc need to be considered so that the pill gets properly digested and the medication disbursed as needed.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

PJ555
Regular Member


Date Joined Sep 2011
Total Posts : 79
   Posted 10/6/2011 11:49 AM (GMT -6)   
I had GPS 9 years ago and I don't think that there is any direct connection between Lupus and GPS. Now with all of the medication absorption and things like that oh yeah we struggle with that. If you are calcium deficient and your bones are suffering that could be a biggie. If you are anemic yup there is your culprit. I have been anemic since I had it. I take a B12 injection once weekly. But I still am super anemic and have more blood issues than that. I don't think that GPS has a lot to do with autoimmune diseases you either have one or you don't, GPS can't give you one of those but let me tell you this.....IT SURE MAKES IT HARD TO CONTROL THEM.

Movingon2010
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/15/2012 5:52 AM (GMT -6)   
I understand that this is an old post but when I was searching about people who were diagnnosed after GBS this post came up and it was very helpful.  I had GBS in 2009 and lost over 115 pounds.  I am now a great weight but went to get test done because of exhaustion.  My latest labs show that I am severly anemic, my b12 is very low, I have low wbc and rbc as well.  I suspect lupus as I have other autoimmune skin issues.  My problem is that I dont know that my doc (regular internist) understands our body make up to truley make a diagnosis.  My question is what alerted your docs that you may have Lupus and what prompted them to what was it in your blood test that made them test your ANA.

Post Edited (Movingon2010) : 3/15/2012 5:57:01 AM (GMT-6)

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