Low Vitamin D & Lupus?

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MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 12/14/2010 10:33 PM (GMT -6)   
Hi all. Just wanted to give an update and run something by you...I spoke with my rheumy through email today who wants me to have another CT done in a few weeks to make sure the pneumonia/pleurisy is resolved & the treatment worked.

She also said my labs from 11/30 looked good except my vitamin D level is still low. So I was put on 800IU's of vit d a day along with my daily vitamin. Does anyone else have problems with low vitamin d levels? Im not sure why I would as I drink milk and have a regular calcium/vit d intake, take a daily vitamin...im not breastfeeding anymore(i haven't been for almost 6 weeks now)and i dont stay totally indoors but only go out for short periods of time. Why would this be affected?, I have also never had low Vit D levels before now. Thanks. -Lupie Britt

P.S. Im currently on the following meds: Plaquenil, Keppra, Prilosec, Multivitamin, Vitamin D, Colace, Folic Acid.

MissLadybug
Regular Member


Date Joined Oct 2008
Total Posts : 261
   Posted 12/14/2010 11:41 PM (GMT -6)   
Ya know I find that really odd because I am highly sun & light sensitive but I am also chemically allergic to all sunscreens so I dont even use any since it makes it worse....guess its just one of those crazy lupie things...hope you are well *hugs* Thanks. -Lupie Britt

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 12/15/2010 7:02 AM (GMT -6)   
Yes, I have had low Vit D for about 2 years now. I have been taking 50000 IU's weekly for about 6 months. My level went from an 8 to a 12, the last time we had it checked. I will be getting it checked in a few weeks but don't hold much hope for it going up! I think mine has more to do with kidney issues caused from the lupus than anything else!!
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16718
   Posted 12/15/2010 10:29 PM (GMT -6)   
Mine is low too. I think mine is due to having IBD. Interesting that so many people with different conditions have vitamin D deficiency.
Co-moderator: Ulcerative Colitis
03/07: Mild Proctitis | 08/08: Pancolitis! | 09/08: FLARE & Anemic Asacol (9) + Canasa | 01/10: FLARE AGAIN!! Asacol + Prednisone + Canasa | Currently: doing OK - Asacol + Canasa + 6mp + Allupurinol + Prednisone (tapering again...)

MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 392
   Posted 12/17/2010 3:31 PM (GMT -6)   
I have not be dx with lupus but have posted on here and keep comparing.
I do have thyroid issues and my TSH is low as is Vit D. He adjusted my meds and gave me Vit D.
As far as I know the D has never been low before.
I am outside alot, espically during summer, and I never wear any kind of block or screen.
I find it interesting about the Vit D and have been doing alot of surfing for info. Interesting but confusing.
May the sun shine on you and keep you well.

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/17/2010 9:49 PM (GMT -6)   
I saw on Dr. Oz that a good sighn your Vit. D. could be low is if you push on your sternom and the bone is tender (don't push hard) and the same for your shin bone. Isn't this interesting, mine is tender.....
There can't be a crisses next week. My schedule is already full.
Henry Kissinger

MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 392
   Posted 12/19/2010 8:23 AM (GMT -6)   
Both spots have been sore for a month now. I really think you get more info here then at any Dr around.
May the sun shine on you and warm your heart.

mechiko
Regular Member


Date Joined Jan 2011
Total Posts : 82
   Posted 1/3/2011 3:12 AM (GMT -6)   
Most people in the Northern hemisphere are low in Vitamin D - and 800 IUs won't do a thing! That's a drop in the bucket. I live in Alaska (virtually EVERYBODY is very low), and I take 6,000 IU a day just as a baseline, and my levels have been pretty compliant. My mom took 50,000 IU per week for a year and her levels only increased from 2 to 20. Normal is 50-60. The research on Vitamin D is very interesting, especially related to autoimmune diseases. It seems like research into it is continuing to gain, as well - maybe we will know something new in the next few years?

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 1/10/2011 7:26 PM (GMT -6)   
Mechiko, you are right. The vitamin D issue has nothing to do with lupus. I heard like 80% of Northern hemisphere has it. That is why more doctors are testing for it now.
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/22/2011 6:27 AM (GMT -6)   
Wow! I just went to the doctors and she diagnosed me with low vit D she said I was at 8 and should be between 35 and 75, I am glad I saw this post I did not know how common this really is, she did say my liver functunctions were not normal? wonder if that had anything to do with it, good luck to you all!

Kat

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 1/25/2011 6:33 PM (GMT -6)   
Yes, it is so common now, that most doctors are testing for it. Kat, I hope all go's well for you.
 
Enjoy what you can today and leave the rest for another day.
 
Frank
 
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