Have her seen by a lyme literate doctor. Make sure the doctor specializes in lyme disease. Lyme mimics autoimmune diseases such as lupus or it can induce autoimmune-like symptoms. Have your other autoimmune diagnosed family members seen by a lyme specialist. Do not settle for the standard CDC lyme tests, even they tell you this test fails to show lyme 80 to 90% of the time. Find a lyme doc via http://www.lymenet.org/SupportGroups/ click on link and scroll down and choose your country then your location. The support groups can help you with locating a lyme specialist in your area.
Borrelia Burgdorferi(Bb) tends to infect the B-lymphocytes and other components of the immune system which are responsible for creating the antibodies, which are then measured by an ELISA test or Western Blot test. Since antibody production is greatly compromised in infected individuals, it makes no sense to use these tests as the gold standard or benchmark for the presence of Bb. We also are aware that in endemic areas in the US up to 22% of stinging flies and mosquitoes (2, 8, 9,10) are carriers of Bb and co-infections.. In South East Germany and Eastern Europe, 12 % of mosquitoes have been shown to be infected. Also many spiders, flees, lice and other stinging insects carry spirochetes and co-infections.
A negative Western Blot does not and cannot prove the absence of the infection. Having taken another route altogether, we have recognized the following: Today many if not most Americans are carriers of the infection. Most infected people are symptomatic, but the severity and type of the symptoms varies greatly. The microbes often invade tissues that had been injured: your chronic neck pain or sciatica really may be a Bb infection. The same may be true for your chronic TMJ problem, your adrenal fatigue, your thyroid dysfunction, your GERD and many other seemingly unrelated symptoms.
Make sure your Lyme labs that you had done check for bands 31 and 34. The CDC prohibits labs from reading bands 31 and 34 on the Lyme IgM and IgG Western Blot tests. The reason for this is because at one time they were working on a vaccine for Lyme. Anyone inoculated with the Lymerix vaccine would come up positive on bands 31 and 34 becuase those bands were SPECIFIC to borrelia burgdorferi. The Lymerix vaccine was discontinued because it was killing people. But, despite pulling the vaccine from the market, the CDC never re-established the reading of bands 31 and 34 to the test. These two bands are specific to the borrelia bacteria and do not cross reference with any other bacteria.
The ILADS (International Lyme and Associated Diseases Society) has established its own criteria for reading the Lyme WB tests. Their criteria requires that bands 31 and 34 be read which greatly increases the accuracy and validity of the tests. Igenex Labs in California is a good lab. If you didn't have your Lyme tests from this lab, or a lab where bands 31 and 34 were NOT read on your Western Blot tests.....you should be re-tested by a lab that does.