Now doc is saying its not lupus??????? WHat?

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kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 12/30/2010 6:17 AM (GMT -6)   
Okay I had to call my Rheumy yesterday and ask him a question regarding my Lupus because I went to a derma for rash and needed to know what kind of lupus I had ( if it effects the skin of organs???) when he first got on the phone he said systemic and then asked me why I needed to know, I told him why and aslo added that I was filiig for dissability and needed info for laywer( which he already new I was filing but not about the laywer) then he immediatly said" no you dont have Lupus you have Ra" I was wordless, when I could talk I said you diagnosed me with Lupus in july, how can I go from having it to not having it ( esspecailly when I have symtoms) he said my symtoms are from the fibro and ra, Can he do that? I am so confused I just spent 10 years trying to find out what the hell was wrong with me and got a diagnosis and simply asking a question, he says nope no Lupus, when I have been at his office twice a month for follow ups. Now I am freaking out because I stated on the dssi claim that I do have lupus and I am appealing and only have a couple of days to get this all together and I dont know what to do? i have to get a refferal to see another rhumy for a second opinion and as you know that may take a while I only have untill feb 2nd. Please if anyone has any advice I need it! Thanks

Sad and confused, feel like my world has been turn upsidedown.

Kat cry

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/30/2010 12:57 PM (GMT -6)   
Oh Kat, I'm so sorry....my rheumy has done the same thing to me from time to time!!

First he'll tell me I have lupus, then he'll say, no, it's not lupus, it's some other connective tissue disease!! I get so MAD sometimes! I know the diagnostic criteria for lupus and I definitely meet enough of them to be dx with lupus!

Do you have copies of your blood tests? Positive ANA is not necessarily lupus, but +ANA along with high levels of anti-DS DNA are indicative of lupus.

Ask him for a complete copy of your chart, with all of his notes. He has to give it to you by law. If he wrote in July that you had lupus, then you need to show that to him and ask him why he changed his dx!!

As you mentioned, ask for a referral to another rheumy for a second opinion. You may need to contact your local lupus support group if you have one and ask which local rheumys are experts on lupus. Not all rheumys are experts on lupus. My rheumy is very well-known for his work on fibro, so he usually focuses on my fibro too. That's his bias....it's what he knows best. Even when my lupus is flaring he'll say it's my fibro....he doesn't usually believe it's my lupus until I send him pictures of my flaming red malar rash via email.

Good luck honey!
((((((hugs))))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 12/30/2010 1:28 PM (GMT -6)   
Thank you for replying JoAnn, I have been beside myself. it took me years to get diagnosed and now I am back where I started from, its so upsetting.
I have just changed my Pc and I have an appt with her on Jan 5th she is an internal med doc too, ( which my old primary was not aand i did not care for him) so I am having her do a complete work up and refeer me to another rhumy for an sec opinon. I am sorry to hear that you have had the same thing happen to you, how frusterating, when dose it stop. But its reasuring to know I am not alone
Thanks again
God bless
Kat

J.P.
Regular Member


Date Joined Oct 2010
Total Posts : 86
   Posted 12/31/2010 1:00 AM (GMT -6)   
I wonder why your doctor would do that to you? It doesn't make sense! Sometimes I really hate doctors. I'm sorry he did that to you. My mom says doctors don't like to diagnose lupus for insurance reasons but to diagnose you and then when you need it just to change it in a split second is wrong.

Do you know if he actually diagnosed you on paper? I have had three different doctors say it may be lupus but when it comes down to it they don't know whats wrong and tell me it's probably lupus and I will probably get worse as time goes by. I guess I'm just suppose to wait and see? I'm pretty sure none of my medical records have anything about lupus but like the ones from 12 years ago I'm not sure.

I think JoAnn had good advice, get your medical records quickly so you can see for yourself and have proof. I hope your doctor stops trying to do whatever he's trying to do and gives you the information you need for disability.

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 12/31/2010 6:51 AM (GMT -6)   
Thanks J.P. I am with you my faith in doctors right now sucks! I just dont trust them. I dont know if its in my medical records, but in July he said that I have Lupus and handed me information about it. I dont have all my labs but the ones I do have read like this Anti SNA 1.4 H ( guesiing the H is for High) out of range and Anti- DNA there are no number but it says positive or negative and positive is circled CPP IGG AB is out of range at 39 Thats all I have and the rest is so fuzzy on the copy I cant make it out. The last time I was in his office I had ulcers in my nose and mouth he didnt even look at them and when I said they were really bothering me he said go to your primary doctor, I told him I did and my primary doct said go to your lupus doctor I feel like I am being bounced around like a beach ball, so when I talked to him over the phone and he said I dont have Lupus I told him I was seeing a dermatologist for my rash and lesions and he got mad and said I needed to come see him, I told him that I tryed and he sent me back to my primary so I went and got a referral for a derm, and he is trying to take care of it, UGGGH! I just want to scream sometimes. how can you be a doctor thats supose to be there for you and help sick people and all they do is pass the buck.I am hoping this new doctor can help me but I am scared she might be the same as the yahoo I just got rid off. Thanks for the reply J.P and I am with your mum on the reason for insurance reasons. Thats terrible that you keep getting it Lupus its not Lupus not knowing is the worst part, even if it is Lupus you ant a name, right. Good luck to you also, take care!

Godd bless

Kat

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 12/31/2010 11:02 AM (GMT -6)   
My doctor told me I had a mixed connective tissue disease or an overlap syndrome but on my records, it says "unspecified arthritis."

It sounds like you need a new rheumy. I know sometimes these diseases are difficult to tease apart and people can have more than one disease.

I'd ask my attorney about the diagnosis dilemma you are having with your doctor. It might be important for your disability.

Good luck-:)
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, Colon resection Nov. 2010, hopefully in remission
joint pain, fatigue, Mixed Connective Tissue Disease
claritin, prometrium, VSL#3 probiotic, Vit. D, nexium, pexeva (paxil), synthroid, cozar, Vit D,
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive A

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 12/31/2010 3:57 PM (GMT -6)   
Hi Jeanneac, What ever happened to " if it looks like a duck and quacks like a duck " ( then therefor it is, right?) I know it s the great imitator, I just wished he never would have said its Lupus if its not. I am looking for a new rheumy, I am done with him. I did call my Attorney and he said regardless he still thinks I have a case because of the Ra and the seizures, but told me to keep him posted on what my new doctor says. I am trying to remain hopeful. thanks! Good luck to you also, its helps to know I am not alone and people can relate.

God bless and have a happy new year!!!

Kat

lmarie56
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/3/2011 8:50 PM (GMT -6)   
Hi,
I am new here to post but not new to Lupus. I was reading your post so I had to answer by signing up. I have had the same problems. Someone mentioned to me to look at what my Dr was submitting on the insurance codes for payment. 710.0 and 710.9 and some others have been on my billing. 710.0 is lupus, 710.9 is MCTD. If you look up insurance billing codes they are all listed, maybe this will help your Dr recall what his DX was....Also will help with your claim, hopefully.
Lmarie

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/3/2011 11:55 PM (GMT -6)   
Thank you lmarie, I will check that out. now do I have to get in touch with the insurance to see how it was billed or the doctors office?
God Bless

Kat

lmarie56
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/4/2011 9:46 AM (GMT -6)   
Good morning, The medical billing codes are listed on your bills from the Dr office when he submits to your insurance for payment. Look through all of your bills, including payment statements issued from the insurance company, lab billing and lab order sheets,(you can get copies of those from the lab that performed your tests) Mine for my Primary have had other things listed as well depending on my my main complaint for that visit, (UTI, Back pain etc) but the first billing when I started going to him has 710.0. The one from my old Rhemy had both 710.9 a few times, and then 710.0 among other ones. When I first learned all those numbers meant something and my Drs always were going back and forth about my DX and not agreeing with each other I looked them all up on the internet (several sites) made a list with dates etc. I hope this will help you out some.
It is bad enough to be unwell with Lupus but I really dislike what so many of us have to go through to get proper care or help with our health and lives, it is just so wrong...

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/4/2011 12:15 PM (GMT -6)   
Thank you so much lmarie, I am going to pull out all me copies and see what he has billing me under. Yeah as if the disease is not enough and all the emotions that go with having any disease and they toy around with you yet again. maybe one day there will be a test to confirm the diagnosis of Lupus once and for all (one can hope) instead of this guessing game no one should have to go through. Maybe not in our lifetime and later is better than nothin right?. Thanks again for all the helpfull info

God bless
Kat

ebteb
New Member


Date Joined Dec 2010
Total Posts : 12
   Posted 1/4/2011 3:19 PM (GMT -6)   
boy, do i feel your frustration, angst, disgust! and i'm right there with you! when reading your previous posts, i was envious that you got the dx. oh, for an answer, right. i'm more of the opinion that the other guy is covering his tracks for some reason. like imarie says regarding coding, maybe he messed up on his insurance coding and doesn't want to get hosed out of money. all it does is wear down your resolve, guessing about it, but how can you not, right? he'll never be honest to you directly -- my experience anyway. regardless, you were and are on a strong track, kat10, so use that frustration and go get the best of the best. your expereince, strenght and perservance have been helping me and i wish you the best. by the wat, well done on the attorney, too. my court appearance date for aproval is feb 2...

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/4/2011 5:56 PM (GMT -6)   
Oh Ebteb, I am so sorry you are struggling also, and I cryed when I read your post for I am glad I can help someone else and give hope when most times it feels like there is none. even if I cant get anywhere with this or get any answers at least I know I didnt and wont give up not until it is resolved or I feel a doctor is accually doing something to help me and I can live a productive life. Yeah I am so one board with Imarie about the coding issue. If you dont mind me asking whats going on with you? I am guessing that you havent got the diagnosis yet but they susspect ( is that all right for me to assume?) Good luck on your court date I will be keeping you in my prayers. I swear my prayer list is so long at night it takes me 20 min just to get through it sometimes I fall asleep in the middle of it wake up and start again, maybe I should go to bed earlier, lol!

God bless

Kat

ebteb
New Member


Date Joined Dec 2010
Total Posts : 12
   Posted 1/5/2011 2:12 PM (GMT -6)   
hey kat10!  we've got to keep our sense of humor -- i do the same thing with my nightly prayers.  my story is not too unlike so many others...  since the early 1990's, i have complained to dorctors about abnormal dizziness/vertigo.  i live in northeast ohio and used to commute to denver, colo for work.  traveling up and down all the curvy mountains is when i really began to notice the vertigo.  i was literally unable to tell if we were going up or down the mountain, even when looking out the window.  amazing that i never blew chunks in the vehicles of the brokers i was working with, LOL.  anyway, i just didn't feel right, either.  you know, right?  the headaches were next.  then the exhaustion -- or maybe those were all together.  i used to train for triathalons and compete, but by the mid-90's, i couldn't keep up on a regular schedule.  if a ran two-three days in a row, i'd be out for a week just unable to perform at all.  plus the work schedule just beat the crap outta me!  so, i thought it was the work schedule, so i switched careers to 'save my life'.  even though i absolutely loved what i was doing, i just couldn't do it anymore.  well, it wasn't the work schedule...  then i got married to a real piece of work, (married for 1st time at 40 cuz my career was my life).  well, he wouldn't 'permit' me to work.  i know, i know, what was i thinking?  so, i got really healthy and left him in december '06.  starting in '07, i was so excited to get back to a career.  the good Lord had a different path.  i thought it was my sugar cuz my mom had diabetes...i felt mentally fabulous and physically...again, you know.  i noticed that i my legs were trembling up and down stairs, i would miss the steps and fall, trip over things that weren't there and my eyes/vision were super funky monkey.  by february of '07, i was in the hospital.  i lost the vision in my right eye and 50% in my left.  optic nueritis.  at first they were sure it was MS.  that's been completely elimated as a supspect, now.  the optic nueritis would heal after steroids, but kept coming back.  i was on liquid and high dosage pill steroids for more than a year.  then the other stuff started cropping up.  memory/cognition, speech, tingling, muscle and joint pain,urinary, gastro, nausua balance (wicked bad), continued dizziness/vertigo.  over the past year, we've uncoverd mild brain atrophy, livedo reticularis, heart murmur, iron deficient anemia, spastic colon along with the now labeled recurrent autoimmune optic nueritis.  my ANA always comes back borderline aka negative.  my sed rate is flagged H (high) but they say it's 'not alarmingly high.  my clear creat is actually low, whatever the heck that means.  maybe all those steroid treatments over the last four years.  who knows.  my RBC, Hgb, HCT are all low and my MONO%, EOS%, EOS# are high.  the doctors sure act as if it's nothing!  what's worse is the first nuerologist i went to said it was all in my head (and she's from the mellon center at cleveland clinic, so she should know, hahah) and that i'm depressed that none of the above are connected.  as a result, that goes with my file everywhere i go.  depressed, uh, ya, what would you be miss know-it-all lady nuero.  so, once a business minded real estate guru, now i have a hard time on the day of the week, have mini-black outs where all of a sudden i don't know where i am or how i got there (scariest of all sysmptom by the way), speak dyslexically or drunk-like and i don't even drink.  get confused and lost in simple conversations like hello (lol), have perminant vision loss in both eyes, double vision all day everyday.  yada yada yada.  i just keep looking for the silver lining in each phase of my body break-downs.  i'm a much better listener, more compasionate, empathic and sympathic and as a result, have been able to help people just as you did and are helping me.  so that's my story in a very large nutshell, kat 10.  i am looking forward to hearing back from you.  if not today, sleep with the angels!

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/5/2011 7:43 PM (GMT -6)   
Hey ebteb, I am so sorry you have had a rough time of this, I was reading your story and thought my God that is me, thank you for sharing it with me and I know you probably already know but I will say it anyways " you are not alone " so many times we feel like we are esspecially when our doctors wont take us seriously. You must have had an angel watching over you on your commutes to work, I could not even fathom that, having the dizziness/ vertigo and driving, my God I have a hard enough time walking without taking out someone or my toe on a wall or corner of one, Ouch!
I know about the ex thing I did it not once but twice, first time real young and stupid second time old and stupider, Lol! I allways have to learn the hard way, no third time for me ever. ( mark my words)
You said they ruled out MS? did they do a spinal tap? what dose you current doctor think is going on? dose he susspect anything or is he just trying to pin all your symtoms on everything but or explain them away? If your not getting results with your current i would switch docs, I cant begin to tell you how many I have had and I will keep going until I find one that can either think outside the box or come to a diagnosis for me and help me feel better ( or I drop dead) whichever comes first and I hope it s the later. Ya know your lab tests read the same as mine except for the Ana mine is ussually positive. Hopefully this will offer some more hope for you, I went to a new doctor today, with my past 4 years of lab work in hand ( I always ask the docs for copies) I told her about what the rheumy saying it was not Lupus after saying it was and she said Something is definetly going on with me my labs where not normal and she said I am looking at you right now and can see you have the lupus mylar rash on your face, she is sending me to the University of Michigan for a complete work up by one of their rheumys. she accually sat there and took time with me and for the first time I felt like a doctor was really listing to me not just hearing me, I left that office today with hope, and I cant say it enough but please, please,please at least get a second opinion if you dont want to or cant switch docs, you owe it to yourself to at least do that.
Have you ever been checked for seizures? you mentioned mini black out and thats what I have and was diagnosed with seizures, I too also had a nuro tell me I was depressed and it was all in my head, I just got a second opinion and a third and the 2 other nuros said no you are having seizures, do you see a pattern hear I seem to do everything in 2s ( hence the husbands Lol) I dont think I ever welcomed you to the site, so welcome, this site has really helped me as I know it will you too, I have learned so much from posting my questions and/or concerns, sometimes I dont even need to post anything I just read a post and it offers answers and support, so I am glad you are here. :)
Have your doctors put you on any medications to treat any of the symtoms you are having? I am sorry if I allready asked you but my short term memory is bad, by the time I re read anything I forgot what the hell I was gonna say or ask, O- Vay! hope to hear back from you soon!

God bless

Kat :)

ebteb
New Member


Date Joined Dec 2010
Total Posts : 12
   Posted 1/5/2011 8:49 PM (GMT -6)   
hiya kat!  your messeage was really funny, sweet and informative.  too funny about the driving in the mountains!  9 out of 10 times i was not the driver, praise the Lord!  i would've driven off the switchback by accident (pun intended).  between the vision issues and the mini black-outs, i've taken myself off the road.  thanks for your welcoming me to the site.  i am so glad to have connected with you.  and so happy to hear your appointment went well.  yes, on the spinal tap for MS.  then i just had them do a complete spine MRI of all three sections.  i was so suprised that it came back negative!  so i had an ex-boyfriend (you'll love this one) who is a nuero radiologist and has his own bigtime film reading company (CTScans, MRI's yada..) take a look at them along with the list of my symptoms.  he had me call this guy in canton who's a hema/onc and has a huge practice there.  they were telling me i had early stage lung cancer!!!  after they spent 1000's more in insurance money doing more tests, it was as if the guy was pissed-off i didn't have it.  he got angry with me and literally dismissed me from his office.  what whack jobs are out there, man.  well, chalk that up to another plus side for me breaking up with the neuro-radiologist!  i did get remarried two and a half years ago.  i believe i got it right the second time.  he's been very supportive through it all.  i've been mulling over an idea my mother gave me.  tell me what you think.  i really do like my pcp doc.  he's been attempting to navigate through all this and i know i make it difficult for him when i go out and find another dr, ie neurologist etc.  but, as of late i've been kinda forcing him to direct me to the next place.  i haven't been to a rhuemy since 2007 and it was a referral made through my optic neurologist, not my pcp.  what my mom suggested is to write him a letter, asking him a number of questions such as, when do these individual coincidents (dx's and blood work) pointing to lupus, stop being coincidental and add up to a formal underlying dx of lupus?  and can you please refer me to a rhuemy who will take me seriously?  mom's thought was that it might help him focus better when reading a letter cuz doc's are all so studied, ya know?  plus, it is always rushed in a phone call or even a visit.  theyre all so busy now it seems like their on the next or last patient in their minds.  anyway, please let me know what you think about that approach.  i just don't know if i've got the 'juice' in me to start over with a pcp.   although i am a devout buckeye, i hope this gig at UM is the key for you.  also, i'd really like to know about the 'seizure' situation.  they did an eeg which i believe is the test and it came back within ok range.  although there was one test that i did 'flunk' and i can't remember which one.  go figure.  i would like to hear more about your seizures though, so if you are willing...  have a wonderful evening, kat!  ebteb

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/6/2011 12:09 AM (GMT -6)   
Hey Ebteb, Glad to hear from you :) Wow reading you post yes doctors can be nut jobs too, that degree dosent make them right in the head (no pun intended) dose it lol! I agree with you Mum with the issuse of your Pcp if you really like him and think he is really trying to make an effort and may just need a lil push here and there then I would write the letter voicing your concerns and questions, because he is the only one who can refer you and you will need those refferals to get anywhere with a diagnosis. But..... if he dose not seem like he wants to help you then I would definetly find another doctor ( I know you have it in you to do so) 2 years ago I all but gave up, I was so fed up with my current doc and the run around he was giving me, I told my husband at the time that I was done no more doctors no more appts, what happen to me will be and I wont do anything to stop or prevent it, the next day I stopped at a yard sale and was walking around when a woman came up to me and said " I dont mean to be rude but what do you have?" you are sick right? For about a min I could not speak, I said yes I am sick and she asked me what my symtoms were I told her and she said she noticed I was walking with a limp and the rash on my face, she told me I looked sad too and she has been there before, she then explained that after years of quack doctors she finally found one that took her seriously and found out she has MS, I fought to hold back the tears as she said you look like a person ready to give up ( and I was) she made me promise that I would never give up even if it was only 1 year or 10 to get my diagnosis, she said just whatever you do dont give up because it will all be worth it in the long run, she started her treatment and is walking with a cane but she said she believes it could have been much worse had she not pushed herself said she dosent feel 100% better and proably never will, but just knowing and being able to treat it is half of it. Her name was Brenda I will never for get it ( and I am terrible with remembering names) but for some reason that one stuck with me. OH the guy in Canton that was the hema/oncology was that canton MI?( out side of garden city?) if so I went to the same guy and wack job was right. what made them think you had lung cancer? and how dare he be dissapointed you didnt, what was he trying to reach some sort of quota? kick back? Jerk!
I am glad to hear you got a decent guy, any guy that is willing to put up with our crap has to be a saint cuz its not easy for them.
I have had 2 normal eegs and both doctors that gave them said I am having seizures temporal lobe seizures and that they always do not show up on the eeg testing. One of my seizures happend when I was driving to work one day, it was scary I just blacked out and when I came to I was no where near my work and had no idea where i was, needles to say I got to work late that day and when I did a co-worker seen me on the road and asked where I was going because I turned off the wrong way and I was ahead of her, but got to work late she was worried so I told her about my seizures. I will have episoids where someone is talking to me and I zone out I cant understand them, like there speaking a forgin language, they ask me a question and I cant respond when I finally can speak I studder and or talk like I am drunk and cant articulate what I am trying to say and feel sick, just before it happens I ussually will smell something, I would allways ask my husband whats that smell he wouldnt smell anything and then it would happen, they have gotton worse now with uncontrolable jerking movments (not grand mal) my head will trash once or twice or my arm or my leg. So basically when I have one know I look like the walking dead zombies twitchy and spacey, Lol! Hey maybe thats a new career for me, right?
ON a serious not e I think you need someone new to look over your eeg results esspescailly if you had something come back abnormal, they might want you to have a 48 hour eeg where they wire you up and send you home its alot like a heart monitor except its for you brain and you go home looking like a mummy. I was suppose to have one last week but I had lesions on my scalp so they said to wait until they were gone, so I will be having it done soon! fun fun. Let me know what you decide. Hope you have a wonderful evening also! take care

Kat

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/6/2011 9:07 AM (GMT -6)   
Friends,

Many of us have trouble with our eyes and our concentration because of lupus - we would love to contribute to your discussion but simply can't follow your writing.

Could you consider using capitalization and paragraph breaks? Otherwise I fear you won't receive the full benefit of the forum.

Thanks so much,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/6/2011 11:03 AM (GMT -6)   
SORRY LYNNWOOD I WILL KEEP THAT IN MIND, SORRY I RAMBLED IT ALL TOGETHER. THANKS FOR BRING TO TO MY ATTENTION
KAT :)

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/6/2011 3:31 PM (GMT -6)   
No problems....I just wanted to confess I couldn't read the last few posts in this thread!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/6/2011 6:03 PM (GMT -6)   
THATS OKAY, LIKE I SAID I AM GLAD YOU BROUGHT IT UP , I DONT KNOW HOW TO MAKE THE PRINT LARGER SO I WILL JUST TYPE IN CAPS, I AM NOT VARY SAVEY ON COMPS :)

KAT

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 1/6/2011 6:05 PM (GMT -6)   
I don't think She meant all caps :)! Just capitilizing begining of sentances and places capital letters go! It gets to be very tricky when all words are lower case and no paragraphs, it also gets tricky to read if there are paraghraphs of all caps! Thank you for being undersanding :)
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/7/2011 12:29 AM (GMT -6)   
Lynn laughs, and says -- how silly of me to write it that way. Amy is right, I was just requesting those old-fashioned regular capital letters in all the regular old spots. Sorry if I confused anyone!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

kat10
Regular Member


Date Joined Aug 2010
Total Posts : 112
   Posted 1/7/2011 8:58 AM (GMT -6)   
I AM JUST GONNNA BLAME IT ON MY CHEMO BRAIN!

ebteb
New Member


Date Joined Dec 2010
Total Posts : 12
   Posted 1/7/2011 11:38 AM (GMT -6)   
Hi all.  I will also do a better job of proper writing.  I admit that I have gotten too lazy to do so, because when I re-read my post to edit, well, there are so many corrections...
 
Thank you, Kat, regarding the siezures.  That is exactly what happens.  I don't understand why, if so many people with this disease experience the same or similar symptom, I get the 'yes, she's outta her mind, alright.'
 
The last big one I had, for the first time, I felt horribly nausia (sp).  I also felt as if I was just going to roll of the edge of the earth while sitting in my step-daughters truck.  I suppose that was a form of vertigo?  And, well, like my body systems were just going to stop-shut down.  I'm not sure if that makes sense to anyone else, but if so, please shout out!
 
What I should have done was have the girls drive me straight to the emergency room, I suppose.  That was right before the holidays and all I could think of was, 'just get home, just get home...'
 
The last three, (this being the 3rd), I have had super bad dizziness and vertigo.  I had to ask my husband to come into the room last night to comfort me as I fell asleep because I had such bedspins.  Just like when I was in college, but no embarassing stories to go along with it.  This is the second or third time it has been that severe.  It's been a few years since the last time.
 
Any hew, I am going to organize an outline in effort to write a letter to my PCP.  And I thank you for the support and encouragement to press on.
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