In retrospect, I have been having bizzare symptoms since the early-mid 1990's. In 2007, I was diagnosed with optic neuritis. Over the last few years, that has been "upgraded" to recurrent autoimmune optic neuritis. In addition, I now have numerous other diagnosis such as mild brain atrophy, levido reticularis, iron deficient anemia, spastic colin, etc. I have double vision now, period, it does not go away. I experience severe vertigo and dizziness regularly and moderatley daily. I have what I refer to as mini-blackouts, where all of a sudden, i can't figure out where i am or how i got there. my speech is funky where i either talk dyslexiclly or can't complete a thought or sentence on a regular basis.
MS has been elimanated as a suspect. my ANA blood work always comes back borderline which has meant negative. my sed rates are always flagged H -- high, but am told that the figure is 'not alarming'. meanwhile, i phsyically feel mostly aweful all day everyday.
my spouse and i live in an area with the best rated hospitals in the US but i can't get the doctors to connect the dots. all i seem to get is treatment of specific symptoms. i have been told everything from i'm just depressed, (treat the depression), your're over 40 and need reading glasses, (optic neuritis-steroids), punch drunk syndrome, (haven't had a lick of alchol in more than 7 years). you get the picture.
after several years of frustration, acceptance, new symptom, frustration, acceptance.... i spoke to my optic neurologist on 12-30-2010 to ask her, "when do coincedents (misc. sympotms) stop being coinncedental?" i was told (yet again) that i may never have a "label" or diagnosis and that i just had to accecpt that and stop being a worry wort. i have a difficult time accepting that there is no underlying cause to what has been taking over my body and mind and that i am overreacting to new syndromes as they arise. i am only 48 and don't think i am overreacting to suddenly not knowing where i am, not being able to speak coherently, not being able to comprehend simple repetitive tasks....
i once managed a real estate portfolio worth more that $200million and negotiated more than 100 transactions a year remembering, verbatim, conversations, contract issues, deadlines.... for more than a decade. i was a triathlete and am very sensitive to my physical abilities/innabilites. my health continues to deteriorate and i cannot get any dots connected or answers.
i stay positive through helping others and prayer but i am out of resources for finding answers for what is beating me and my body up.
sorry for the lengthy story, but can anyone advise me to whom i should see? please. thank you so very much.
Post Edited (ebteb) : 1/4/2011 12:57:37 PM (GMT-7)