i am wondering about similar issues. i just started getting a new kind of skin rash this past summer, and they've not gone away yet. i've not yet been diagnosed with discoid lupus, but that what it looks like. and i'm treating it as such, with topical steroids and an increase in plaquenil.
do you notice that the spots do start to fade, only to be replaced by new ones? and do you notice yours starting to fade as you become more relaxed and less stressed? mine do heal and eventually fade, and i notice that they do also seem more subdued the more sleep, and the less stressed out i am. i went on a one-month smoking relapse (i really haven't smoked for years - but just had a bit of a meltdown in that area), and i noticed the rash got worse during this time. it's much better now. i'm trying to stay away from coffee now, too, and i notice an improvement already. things are quieting down, the less stressed i am.
at least it's winter now, so i have an excuse to wear a scarf over my neck! i'm worried that this won't clear up by spring. i'm a teacher, and don't need to hear, "oooh, townsend's got a hickie!!!" about the spots on my neck. even though 95% of the kids are way to polite for that nonsense, there's always that one kid who doesn't know better. you know, the same one who asks adults if they're pregnant and how old they are.
Diagnosed: Sjogren's '94, Raynauds 2000, Vasculitis 2002, Lupus SLE 2004, Lupus Nephritis 2007 (Kidneys are healthy now)
Meds: Cellcept (1000 - 1500 mg), Hydroxy-chloroquine (400 mg), Prednisone (10-15 mg), Atenolol (50 mg), Enalapril (20 mg). Vitamins/Minerals include: Multi Vitamin, Calcium. Other Supplements include: DHEA, Quercetin, Astragalus