Titer Rate- What does it mean?

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cooandoo
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/6/2011 10:55 PM (GMT -6)   
I have had 3 ANA tests done so far, the first was positive with a 1:120? He diagnosed me with Lupus. so my doctor sent me to a rheumatologist and he gave me another which turned out neg. then he pretty much blew me off! He told me it is just my Fibro acting up.  I have had Fibromyaglia for 20 years, um no it wasn't. I had a bunch of new symptoms. I have extreme pain in my hips, thighs and knees. I cry myself to sleep at night and wake up in pain every time I roll over. I have Raynaud's, all though not officially diagnosed, because my doctor didn't seem to think that my fingers turning white was a good enough symptom. The fatique is the worst. The doctor's tell me to exercise, but if I do, then I am out of commission for days. My knees start to hurt so bad, that I have to crawl up my stairs. Now I had my doctor redo an ANA, because I was in another "flare" and it was 1:1280.
Where so I go from here? The doctors really do not seemed convinced that I have Lupus. He is currently on vacation and won't be back for a few weeks.
I have asked him to send me to the Mayo clinic to find out more answers. Of course, this was his suggestion because he doesn't know what else to do, especially if the rheumatologist thinks it is just the fibro acting up.
Does anyone know what other tests can be done? Why my legs hurt so bad all the time?
Is it even Lupus??

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 1/7/2011 12:16 AM (GMT -6)   
Hello Coo....I just wanted you to know I have been where you are, and understand how frustrating it is.  I had fibro for 10 plus years when the new and different symptoms began.  I've always said having the fibro diagnosis did nothing but hinder sorting out the connective tissue/AI problems. 
 
I'm on my third rheumatologist.  My ANA has been positive for 3 yrs - the highest was 1:1280.  I've been on Plaquenil for 2yrs.  My official diagnosis is UCTD, but I've recently had a positive RA factor, so things may be coming into focus, who knows?  I take Plaquenil, which has helped, but I still deal with serious fatigue.  Sometimes it's hard to know whether the fibro has got you down, the lupus/RA/whatever,  or both!
 
Getting treatment for your symptoms is more important than the diagnosis.  A good rheumatologist who is familiar with Lupus is what you need, though they are not always easy to find.  Get copies of all your test results and keep track of your symptoms.   Other tests should include ESR and CRP - which indicate inflammation in the body.  Fibro shouldn't cause inflammation.  There are others I can't think of right now.  Unfortunately, normal readings don't rule out much of anything, either, as you can be sero-negative and still suffer from autoimmune disorders.  Using different labs can complicate matters further.   Personally, a rheumatologist who attributed everything to fibro after you've been dealing with it for 20 years, would be reason enough to look for another doctor - at least in my opinion.
 
It's not an easy road, and I wish you weren't on it, but this forum is full of good folks who are supportive and informative.   You know your body better than anyone - hang in there! 
 
Lucy
 
 
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