I am glad you found us. And welcome to our world.....many of us never have a specific diagnosis, or end up with a dx of 'unspecified" or undifferentiated something. My neuro even suggested I might have an odd type of MS on top of lupus. I think you will find your synptoms so in common with so many of us. And as my dr. said reassuringly.... it is very difficult to dx autoimmune illness when the antibodies come and go, the symptoms wax and wane, and a good dr. will remember that. Lupus is known as "The Great Imitator", and having quarts of blood tested is very common and prudent. I have my blood done every year with both my rheumy and my primary family dr. having given me a standing offer to increase my prednisone, or have my urine tested should I have an increase in symptoms enough to concern me. Finding a good dr. can be a big struggle, so try not to despair. In fact, my OB/GYN and then a nurse practitioner were the ones to first put my autoimmune symptoms together. And I was really sick for 8 years before I was diagnosed.
Hugs and keep us posted,
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night.