Overlap confusion...please help!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sha49
Regular Member


Date Joined Nov 2010
Total Posts : 27
   Posted 1/9/2011 9:01 PM (GMT -6)   
Hi,
 
I'm new and may have an overlap of AI stuff. I posted in the Rheumatoid arthritis forum due to possible spondyloarthropathy. Here is that post.
 
WARNING....LONG POST....SORRY....BUT IF YA GET TO THE BOTTOM, IT IS MUCH APPRECIATED! smilewinkgrin
 
I am trying to figure out what symptoms can be attributed to what.  I want to be better prepared to ask questions when I talk to the rheumy when he calls with the test results (44 vials of blood, hip xray, lip biopsy and 2 pee cups).
 
One of the pamphlets he gave me was for lupus so he must think it is part of the big picture!
 
Thanks for any and all advise!!
 
Sha
Identical twin. 35 yo. Married w/5kids. dx sjogrens w/+ SSA, ANA, scheimer test. Joint pains/swelling, dry mouth, change in taste/hearing, dry eyes (got plugs in now), neuropathy in feet and hands, lower back pain, vibrations in back, brain fog, weird rashes that peel and look like a sunburn, fatigue, etc:p Just got 44 vials of blood drawn, xrays and lip biopsy to try to get a dx thinks an overlap

Post Edited (Sha49) : 1/9/2011 8:19:35 PM (GMT-7)


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 1/10/2011 6:07 AM (GMT -6)   
Hi! Sha,
 I am glad you found us. And welcome to our world.....many of us never have a specific diagnosis, or end up with a dx of 'unspecified" or undifferentiated something. My neuro even suggested I might have an odd type of MS on top of lupus. I think you will find your synptoms so in common with so many of us. And as my dr. said reassuringly.... it is very difficult to dx autoimmune illness when the antibodies come and go, the symptoms  wax and wane, and  a good dr. will remember that. Lupus is known as "The Great Imitator", and having quarts of blood tested is very common and prudent. I have my blood done every year with both my rheumy and my primary family dr. having given me a standing offer to increase my prednisone, or have my urine tested should I have an increase in symptoms enough to concern me. Finding a good dr. can be a big struggle, so try not to despair. In fact, my OB/GYN and then a nurse practitioner were the ones to first put my autoimmune symptoms together. And I was really sick for 8 years before I was diagnosed.
Hugs and keep us posted,
suetoo

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and  Ambien every night.

Sha49
Regular Member


Date Joined Nov 2010
Total Posts : 27
   Posted 1/10/2011 6:32 PM (GMT -6)   
suetoo~ thanks for the personal story! That's what I am looking for....just trying to figure out how many of these symptoms tend to be in general for any AI disease and which ones are specific to Lupus or the others he mentioned!

Thanks for the welcome!

Sha
35 yo. Married w/5kids. dx sjogrens with+ SSA, ANA, scheimer test. Joint pains/swelling, change in taste/hearing/smell and sight (got plugs in now), severe back pain, brain fog, weird rashes that peel and look like a sunburn, fatigue, etc:p
heavy on the "etc"
Just got 44 vials of blood drawn, xrays and lip biopsy/rheumy thinks it's an overlap dx...waiting in dx limbo land right now!
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 2:19 PM (GMT -6)
There are a total of 2,974,187 posts in 326,158 threads.
View Active Threads


Who's Online
This forum has 161234 registered members. Please welcome our newest member, hennaheather.
422 Guest(s), 14 Registered Member(s) are currently online.  Details
jazzgtrl4, super20dan, hennaheather, mattamx, opugirl, Gismo94, The Dude Abides, Girlie, Pratoman, UC_from_39, InTheShop, mtm1704, roczebra, U.C.Me?