I get rashes most of the time, but whether or not I get a rash, I always feel nauseated in direct sunlight. If I continue to sit in the sun for more than a few minutes, I begin to feel exhausted, like my energy is draining out of my toes. If I'm in the sun too long, I end up with strange attacks of chest pain that land me in the hospital.
Yesterday we drove 3 1/2 hours one way for me to see two of my doctors in Southern CA (we now live on the central coast). I keep a shiny white folder in the car to hold between me and the sun, and even so, I ended up in bed as soon as we got home from sheer exhaustion. I slept for about 14 hours. I don't feel well at all today, but this is normal for me if I've been out.
Johnny I'm so sorry that you're going through this! You are definitely not alone, and the others have given you good advice about covering up. That's really all we can do.
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