I know just what you mean about no sun. I think being able to sit out in the sun, (i live on a small lake in NY), is one of the things about my life with lupus that I miss the most. I get the sickest I ever get, with terrible flares triggered by even the briefest of sunlight, and within 20 minutes I am rashed and sick with even indirect sunlight. I once drove for 3 hours into the late afternoon sun coming through my windshield, and had to pull over to cover up with the car quilt tented over the steering wheel. Could you grab a shade tarp, canvass with some grommets and a few lengths of rope to keep in a traveling tote with you? If your jeep doesn't have windows, maybe you could tie the cover over your seat using the car frame and roll bars? I have to plan ahead, and take a white flannel sheet with me whenever it is warm out. Plus hat, plus sun barrier jacket with long sleeves, plus dark, dark sunglasses, (think Audrey Hepburn) and drag a chair into any shade I can find. Thank God for beautiful weeping willow trees. Sunscreen does NOT help, the itching and burning rash is worsened by any I have tried. I often wear hooded sweatshirts, too, and am grateful that I love being warm. Prayers for your ministry, and glad you are posting with us.
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night.