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Dancing
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/18/2011 4:26 AM (GMT -6)   
Hi
I'm interested to hear about anyone else's experience in finding out solid, concrete information from their health professional when considering whether or not to fall pregnant.  I have Lupus Nephritis and I have been to see my specialist 3 times on the subject and I'm none the wiser.  For example he says "if you ask me if you should fall pregnant the answer is no.... if you ask me whether its medically possible the answer is yes but there are risks.  This is delivered in an 'airy' way - I've been thinking that maybe this is because the disease is so variable and maybe there isn't any way to solidly assess the risk.  I am in remission and have been for about 6 months and am on Aziathioprine and Plaquenil.  All good and I feel great though I know I still have ANA indicators.  From my perspective I think I have had a model recovery. Anyway any thoughts would be welcome (note I can't change my specialist or get a second opinion as I live in a remote location.
 

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 1/18/2011 2:23 PM (GMT -6)   
I'm sorry, but if a doctor does not my questions seriously I would find another doctor. I don't pay an expert to be blown off!

Is this a liver doctor? Maybe a rheumotolgist can give you a more complete answer as they treat the whole body not just the liver. Also, a consult with an obstetrician?

There are members here who have delivered successfully with lupus. It depends a lot on the severity of the disease and your personal treatment plan. Some feel better afterward, some go into a flare. Sometimes normal meds that help you will be bad for the baby and substitutes have to be found. Some find the risks too great and choose not to become pregnant.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/19/2011 3:17 PM (GMT -6)   
Hi,
I also have lupus nephritis (since '95) and I am also a post transplant patient. I got pregnant in '09 and now have a little girl. I had to adjust some of my meds. you can be on Aziathioprine while you are pregnant but not Plaquenil. I changed my meds around and we waited a while to make sure the meds would keep me in remission before my docs, my hubby and I decided it was time. I ended up delivering a preemie but it didnt have much to do with the lupus. I ended up with pregnancy induced hypertension. What doc are you talking to? Have you talked to a perinatologist (high risk ob)?
~Suzanne~
Lupus nephritis, hypothyroidism, AVN, Pseudo-Tumor Cerebri, Kidney Transplant
Prednisone, Prograf, Imuran, Synthroid, Diamoxx

Dancing
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/20/2011 12:49 AM (GMT -6)   
Thanks ladies

I haven't spoken to a High Risk Obstatrician - though the more I think about it I'd say its a practical move. Yes my specialist is a Nephrologist. I live in a remote location. Nephrologist is in town, but Rheumotolgist and High Risk Obs are about 6 hours drive away.

Thanks for your thoughts

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/22/2011 7:51 AM (GMT -6)   
I also have Lupus Nephritis Class III. I just had a baby at the end of December. However, I found out I was pregnant just before I was to begin taking Cellcept. Throughout my pregnancy I only had a few issues, non involving my kidneys. I had to deliver my baby 3 weeks early because she had stopped growing, but that may be due to the fact that I took prednisone throughout my entire pregnancy to ward off any flares. One of the drs. on the team had pointed that out to me. My baby is 100% wonderful and doing well.

I would talk to a rheumatologist in regards to your situation. That type of dr. would be the one regulating your meds during pregnancy. I have to say my high-risk dr. pretty much only took care of baby issues, but she was recommended by my rheumy-as they communicate about their like patients. I was kept a close eye on as well throughout the entire pregnancy.


I know that there is risk involved, but many times when you do get pregnanct with Lupus you have a really good chance of the disease either going into a remission or not giving you many problems. You also have a chance of it being worse. Discuss with your dr. treatment for a flare before you get pregnant. My treatment was prednisone-which is safe to take during pregnancy.

I am now 3 weeks post-partum, and have no signs of a flare. I did start taking Cellcept 5 days after delivery though and I'm still on prednisone for the time being.

Good luck and I hope you get the answers that you need.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class III Lupus Nephritis

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/24/2011 12:53 AM (GMT -6)   
Actually it is recommended to NOT be on immuran (that big A word I dont wanna type lol) whilst pregnant. But I do agree, you should find a doctor to take you seriously. They need to answer your questions and have you involved in your care.
Don't Care Bout Nuffin No More, Guess I shouldnt even be in this world
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