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New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 1/22/2011 8:00 AM (GMT -6)   
im new have sle discoid. been well except headaches and colds over christmas. I am asking because iam confussed brain fog dont help
what hapens usually in the first few years this being one. I have another question aswell when is the best time you can claim for benifits if entitled to anything only have child tax need to now job hours are changing soon will be a problem later on long days this illness wont help.

Forum Moderator

Date Joined Jun 2008
Total Posts : 1470
   Posted 1/22/2011 4:02 PM (GMT -6)   
Have you seen a rhuematologist?
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Regular Member

Date Joined Dec 2009
Total Posts : 130
   Posted 1/27/2011 11:59 AM (GMT -6)   
hi troll-my heart really goes out out to you.I have not yet been diagnosed with lupus..but everything is adding up and 2 of my docs say it is.but rhumy has to make the stupid.I got sick 3 years ago,thought I was having a stroke.for almost a year I couldnt even think properly...was thinkin I was really going crzy-then I asked the doc to check my b12.long term low b12 can cause permanent brain damage as well as nerve I go get a needle every 2 weeks.Im taking vit d as well..and am on paquenil.I get really short of breath and a heavy chest like im havin a heart attack.Im hooked up at night to a machine to get sleep.its not pleasant but I do feel better the next day.have you been to a sleep clinic?today is not a good day-feel like Ive been up 3 days straight...cant think rite everything comes out jumbled.then my family laughs...which it does sound funny...but I know its not.I understand you bein grumpy,I can snap on a dime,but its cuz Im just spent,sometimes ya wonder if its all worth it,but it is.and ya sure lose friends,cuz ya cramp their hubby wanted to go on vacation overseas,but Im really not up to he left it at that.the sun is deadly.if you are out,coverup good,cuz it will send you into a tailspin.

Regular Member

Date Joined Feb 2011
Total Posts : 32
   Posted 2/4/2011 9:51 AM (GMT -6)   

If you are having all the health issues you are having and do not go to a Doctor, specifically a will continue to suffer and some of your symptoms can be a cause for concern regarding damage if left untreated.

There comes a time in life when we have to, those of us with chronic disease process', have to set aside our prejudice regarding going to doctors or taking pills....this would be one of them.

Why would you not seek treatment and suffer? Medical Science has allowed us to have within our grasp medications that can make life so much more enjoyable when dealing with things like pain, swelling, etc., This does not come with no cost, however and many of these medications have side-effects; they are however bearable and a price to pay to "have a productive as possible life".

I think if you take this advice and you are treated for your symptoms you will begin to look differently, fondly even, at the medical community.

Best of luck to you.......
"I went to the woods because I wished to live deliberately, to front only the essential facts of life, and see if I could not learn what it had to teach, and not when I came to die, discover that I had not lived." Thoreau
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