Need help - Can you advise?

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New Member

Date Joined Jan 2011
Total Posts : 3
   Posted 1/23/2011 10:48 AM (GMT -6)   



My last 15 years has been a nightmare in the health department. I started noticing something was out of the ordinary when I was an insomniac at a very early age. I had random issues with joints and muscles with no apparent reason for the same. I left well enough alone and continued to live my life as best I could.  My parents and the Dr. always told me it was in my head and I was suffering from the effects of traumas to my emotions in my early life. I was neglected and abused prior to my adoption. Over the years I had many issues with flu like symptoms, insomnia, boughts of memory loss, attention issues, anxiety, pain, and other strange issues all ignored by Dr's due to my history. In 2000 I was in a car accident and a discovery was made. Spots on my lungs and all chest lymph nodes were completely engulfed in granulomas. I have many granulomas in other places, but the bulk was chest related. Lymph and lungs. Since the diagnosis of Sarcoid was placed on my in 2001 I have not been able to get any Dr. to look past that and I was told I am in a quiet phase of the disease. I need help! There is nothing "quite" about what is going on with me and I want my life back. Any advice about Dr's in Cincinnati Ohio or otherwise thought to be helpful is appreciated. Joined this site today because GOD compelled me to do so.


With Prayer and Hope,



New Member

Date Joined Jan 2011
Total Posts : 3
   Posted 1/23/2011 10:52 AM (GMT -6)   
* to add I was treated for Sarcoid for 11 months by Dr. Baughman (world Sarcoid specialist - lucky he resides in Cinci!) before I was in the "Quiet" phase 2yrs later as confirmed by the Sarcoid Clinic @ The Cleveland Clinic.

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 1/24/2011 12:50 AM (GMT -6)   
You are entitled by law as many Second Medical Opinions as you wish. Perhaps try a teaching hospital as they have many world renown specialists, newest technology, current training and tend to "not give up on the patient."

I love the teaching hospital I go to.
Don't Care Bout Nuffin No More, Guess I shouldnt even be in this world

New Member

Date Joined Nov 2009
Total Posts : 13
   Posted 1/24/2011 2:20 PM (GMT -6)   
I have MCTD and although that isn't similar in many ways I just want to say I know how you feel. People who go through these kinda os things tend to loose their identity and the structure of their life, you in no way alone with that. And I say go to a Dr and make them listen because if i hadn't i would be where i am now, i would be alot less fortunate. you know your body better than anyone else therefore you know when somethings not right. Theres a time to be reasonible and theres a time for action, as for you life thats something you need to slowly reclaim, with the help of loved ones, iI haven't managed it yet but God knows that I'm trying.
You'll be in my prayers
Louise- 17years old

Regular Member

Date Joined Feb 2011
Total Posts : 32
   Posted 2/4/2011 10:38 AM (GMT -6)   
Whenever medically your "needs" are not being met you should find another Physician.

Much of the time the patient is the best indication of what is wrong medically but it is imperative you find a Doctor who listens.

I personally, and not just with Lupus, have been ignored throughout my life medically only to have it result in some bigger medical issues requiring surgeries and/or hearing loss. I had even threatened to begin drinking heavily and ********* to alleviate symptoms that were ignored....desperate! (I never did but wanted to)

Women I think are ignored often times as they consider us emotional beings. Women however, are much more in tune with their bodies.

I have diagnosed myself on more than a few occasions and this is very sad and discouraging. If you are lucky as I FINALLY was....a "angel" Doctor will appear in your life and not only listen to you but help you in all ways needed.

I also believe that Physicians are often thinking far too "clinically" when diagnosing and this leaves out the patient themselves who is speaking about how they feel, etc., only to be ignored. This is something that needs to be changed in the Medical community...that we are looked at as patients and not a clinical experiment.

Best wishes.....

Post Edited By Moderator (aimsgirl16) : 2/5/2011 8:14:59 PM (GMT-7)

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