Doctor is 99% sure...?

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Hopeful Dancer
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/25/2011 8:27 PM (GMT -6)   
I am 18 years old and have been dancing and working out everyday for as long as I can remember, however the past year I haven't been able to do anything like I used to. I have seen multiple doctors and had my blood drawn MULTIPLE times with no results. I have horrible joint pain, always short of breath, tired even after a great nights sleep, headaches, slight temperature, body aches, depressing thoughts (which are very, very, out of the norm for me), and heart palpitations. The last doctor I saw is referring me to a rheumatolagist who can't see me until February 25th. All of the doctors have mentioned the possibility of lupus, getting more and more certain about it each time. The last doctor I saw who referred me said that he was 99.9% certain that it is lupus. He said the only reason he didn't say 100% was because he isn't a rheumatolagist himself. I'm honestly to the point that I just want to know for sure what it is, I'm sure you all know the juggling act doctors seem to do with you at this point.

Does anyone have any input or suggestions for me? I'm really mentally exhausted with the whole thing.

southerndiva
Regular Member


Date Joined Apr 2009
Total Posts : 122
   Posted 1/27/2011 6:37 PM (GMT -6)   
Hey there Dancer,
I'm sooo sorry you have been going through all this.  I'm really glad that you at least have an appointment with a rhuematologist because they are the experts in diagnosing auto immune diseases. It took me about a year for me to get a diagnosis and that wasn't until my body basically shut down and made me bedridden.  I'm really curious that they have drawn your blood so many times but no one has discussed results with you.  I have a feeling that there were some indications in your bloodwork, such as a positive ANA or high sed rate, that your doctor has referred you to a rheumatologist.  If he is 99.9% sure than one could only guess that there were some indications in the bloodwork of autoimmune problems. It is important that you try and stay stress free and get lots of rest right now.  I know you are probably a nervous wreck waiting to see the rhuemy, but try and be patient.  There are many drugs out there that can help treat our condition and keep the symptoms in check. Once the rhuemy as seen you and made a diagnosis they will determine the best course of treatment for you. In the meantime, keep a diary of all of your daily symptoms and take any pictures if you get any rashes so you can share everything with them.  Many times when we get in the office we get so overwhelmed and forget to share information that could be very important in making a diagnosis.  Hang in there and keep us posted.
Hugs and Angels,
Lynnette
 
DX - sle and carpal tunnel
RX - plaquenil, prednisone, lisiniprol, etolodac, tramadol (as needed), hormones and lots of vitamins

Leilani'smom
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/31/2011 10:39 AM (GMT -6)   
You need to get in soon to see the rhemutologist, sounds like my 8 year old daughter, tired, seemed depressed, mood swings,join pain and swelling, out of breath...Exactly what my daughter was going through.
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