Weight loss and puffy eyes...

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slm6
Regular Member


Date Joined Aug 2010
Total Posts : 50
   Posted 1/30/2011 8:10 AM (GMT -6)   
I was diagnosed with SLE about 1 1/2 years ago. I'm getting fairly concerned about my weight loss. I was about 120 when I started and now am down to 103. I take Medrol and just started Planquenil about a month ago. My doctor doesn't seem too concerned about it, but myself and everyone around me does. Has anyone else had this problem and will it get better over time? I know I'm lucky to not be putting on weight with the Medrol but I really don't want to shrivel away to nothing!!
Also I've had several people comment about the puffiness under my eyes. It has been bothering me for a while as well. It's not so bad in the morning but by the evening they are huge!! I'm not sure if this is a sign of overdoing it or just another one of those things.. I only take about 4 to 8 mg of Medrol a day.
Thanks for any advice you can give
Stacy
SLE Lupus, Epilepsy, Spinal Stenosis
Plaquenil, Keppra, Medrol, Vicoden, VitaminD/Calcium, Ambiem

Make the best of every day.. You never know what tomorrow will bring you!

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 185
   Posted 1/30/2011 8:45 AM (GMT -6)   
My eyes are affected by my lupus too.. although I do not have puffiness under the eye... it is on the lid...
I have never lost weight.. hope you can get straighten out soon... I have never heard of Medrol....good luck

Hickoryone
Regular Member


Date Joined Feb 2011
Total Posts : 32
   Posted 2/4/2011 8:21 AM (GMT -6)   
Stacy,

I would have them increase your steroid if you still have puffiness...this should reduce the inflammation.

You are on a low amount from what you list which is good as you want to take the lowest amount possible, but if you still have swollen eyes....more mgs of steroids.

I too lost weight on steroids but it's due to stomach aches I get after I eat and/or the Lupus itself which has me with no good appetite. Lupus can cause stomach pains.

I wish you the best.....

mechiko
Regular Member


Date Joined Jan 2011
Total Posts : 82
   Posted 2/4/2011 10:13 PM (GMT -6)   
Steroids (medrol) can cause water retention, thus puffiness under the eyes. Plaquenil can contribute to weight loss, as well. Can you consult with a dietician or nutritionist? There are lots of little tricks to get more calories into your day.. Good luck!

Kathryn

slm6
Regular Member


Date Joined Aug 2010
Total Posts : 50
   Posted 2/5/2011 8:34 PM (GMT -6)   
Thanks for the advice. The weight loss started long before the Plaquenil. I lost another 2 lbs but trying to put it back on. I'm thinking the puffiness comes from overdoing it. There seems to be a trend. The more I overdo the worse they get... The worse I feel.. and so on..

Kathryn, a dietitian has been suggested several times. I definitely think it's an option. The diets they suggest for Lupus and other Autoimmune disease's are so low fat, carbs, and everything else, that it concerns me as well. Always good to try something new though.

Hickory, did your appetite get any better after time or are you still losing weight. I'm at about 100 lbs now. I'm hoping my appetite improves soon.
It's bad enough to feel lousy but when you look it too it makes it sooo much worse!

Thanks again... Have a great weekend!

Stacy

roxeal
New Member


Date Joined Feb 2011
Total Posts : 2
   Posted 2/10/2011 1:59 AM (GMT -6)   
The puffy eyes started with me when my kidneys weren't working so good from the lupus damage. Do you have abnormalities in your complement levels on blood tests, or low albumin levels? High BUN levels, or anything else unusual relating to kidney function? Lupus is a know cause of kidney failure in some people, over time. The weight loss can be caused by albumin loss through the urine you excrete when kidneys are damaged and cannot keep in the good fats in your blood. I do not want to alarm you, just ask your doctor to be sure you are informed. I also know that using flax oil capsules daily was shown in studies to protect kidneys from lupus damage, so I recommend that. Keep them in the fridge for freshness, too. If I get the puffy eyes, I use a little wand massager and one of the attachments that has an edge on it and run it under my eyes and it seems to massage the extra fluid out of that area. Nothing else works. I just had a kidney transplant, so it doesn't get as bad. The only real help I ever got for lupus was the antibiotic protocol for rheumatic disease, discovered by Dr. Brown, a rheumatologist, about 50-60 years ago. You can read about it in a book called The New Arthritis Breakthrough, by Henry Scammell, found online, at bookstores, or some libraries. Or go to RoadBack.org for more info on this treatment, or to find a doctor that is familiar with it. I was already too far gone when I was diagnosed, as I did not have access to medical care or diagnosis in time, but it did give me a couple of really good years that I was thankful for.

slm6
Regular Member


Date Joined Aug 2010
Total Posts : 50
   Posted 2/10/2011 10:08 AM (GMT -6)   
Thanks so much for the information Rox. I'm sorry you couldn't catch it in time to have a better outcome. I had bloodwork done about 3 months ago and it all looked good, but the puffy eyes started about a month ago. I will definitely ask my RA about that. Kidney issues is something that was in the back of my mind.
I'll check out the flaxoil capsules this week.
The Plaquenil has just started to work for me on the pain so I will see what it does with the eyes as well. I've been on it for about 2 months.
I pray your transplant has given you a new lease on life and all continues to go well for you.
SLE Lupus, Epilepsy, Spinal Stenosis
Plaquenil, Keppra, Medrol, Vicoden, VitaminD/Calcium, Ambiem

Make the best of every day.. You never know what tomorrow will bring you!
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