Rituxan infusions

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Nanes
New Member


Date Joined May 2009
Total Posts : 4
   Posted 2/3/2011 4:54 PM (GMT -6)   
Hello everyone, it's been a while since I've posted anything.  I have dermatomyositis and my rheumy wants me to get this new medication treatment, it's called Rituxan.  I want to know if anyone else has done it and if so, what the results were.  The side effects scare me.  Anyone have any info?  Help!

Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 2/3/2011 10:35 PM (GMT -6)   
well I had it a little over 2 years now and now I am showing signs of a flare... Although I can tell you I did have a bad reaction to the med.... All my platelets drop & WBC tanked.. so the admitted me & did a bunch of tests.. I also had a horrible rash...  But before I did the infusion of course I did all the research and it seemed very 50/50 for patients.. some had reactions & some were perfectly fine...  Over all I am glad I did it, even with the bad side effects..

Nanes
New Member


Date Joined May 2009
Total Posts : 4
   Posted 2/4/2011 9:22 AM (GMT -6)   
Thanks Robyn for your reply. I'm still not sure of what to do, but I'm leaning on not doing it, sounds too risky for me, although I don't like taking so much Prednisone (60 mg) and Imuran (100 mg). Hope you're doing well. Hang on in there.

Robyn10217
Regular Member


Date Joined Nov 2010
Total Posts : 41
   Posted 2/4/2011 10:25 AM (GMT -6)   
yeah no prob... right now my doctors are trying to figure if I need to go back & do more infusions... I cant stand taking prednisone... I feel like I have been on it for like 5 years straight.. YUCK! Its been a struggle & I sure you can agree...
Lupus, RA,Sjorgrens,antiphospholipid syndrome,Endocarditis & Pericarditis,Migranes

Imuran,Coumadin,Topamax,colchincine,Tramadol when needed, Prednisone
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